Sadbh had another nice long sleep last night and did not wake up until after 4am. A quick feed, burp and a diaper change later, and she was back to sleep for another few hours.
Once Sadbh was awake, it was time for fun with my father.
He came over to help since our regular nurse is leaving at the end of the week.
Most of the nurses that we have only watch out for Sadbh’s health welfare, and are not necessarily good at helping with Sadbh’s development as a baby.
As I had mentioned in one of my earlier blogs, one of our nurses is more concerned about filling out the medical documents, than attending to our crying baby.
As a result, the plan is for my father to help out with Sadbh’s development, as well as learning how to take care of Sadbh from a health point of view.
Throughout the day, our nurse provided training on Sadbh’s medical equipment, and how to care for her with suctioning and so forth.
Both Sadbh and Granddad also got to have a lot of fun, and even went for a nice long walk through the neighborhood.
When I returned home from work, Sadbh, Granddad and the nurse were all out in the back yard enjoying the nice evening.
Sadbh was having a great time and it was quite obvious that she was really enjoying Granddad’s company.
Later in the evening, when Sadbh started to get tired, both my dad and I started the trach care routine. It didn’t take long to get her to sleep after her bath, and it started off very easy since she was in a deep sleep.
Just as I was securing her trach ties, she woke up and became very irate.
Eventually the job got done, but not before causing a lot of stress.
Earlier in the evening after requesting our nursing schedule for the week, Katie learned that we were scheduled to have a new nurse tonight and with that, she would be accompanied by one of our regular nurses for a couple of hours onboarding.
Now, this would not be an issue if it were during the day shift, as Sadbh is awake for part of that timeframe. The issue with this schedule was that is starts at 10pm and Sadbh would be fast asleep for a couple of hours by then.
Two nurses going over the ropes for a couple of hours would surely disturb Sadbh, and more than likely the rest of the house.
To make matters worse, the nurse that was scheduled to provide the training is our noisy, clumsy nurse.
The end result is that we will not have nurses working tonight, but the hope is that we will get a much better nights sleep than if we had to deal with the alternative situation.
We also learned that our nursing agency has not been able to find a replacement for the nurse that we are losing this week and as a result, our nursing coverage next week onwards is in doubt.
It never ceases to amaze me on how incompetent this nursing agency is, and it’s extremely frustrating that my insurance company does not allow us to use any other agency.
Since we were able to bring Sadbh home from Children’s Hospital, I have to admit that the most difficult thing that we have had to deal with is the nursing agency and their inability to provide consistent quality nursing care.
The few good nurses that we did encounter were a result of pure luck, and unfortunately they moved on to other agencies.
Wayne, Katie and Sadbh.
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