Sunday was another relaxing day for Sadbh.
Since Monday is going to be a big day, we figured it would be best for her to relax as much as possible.
We had a lot of fun playing all day and hanging out indoors, since the weather wasn’t so great.
Later in the day, we set out to meet a few friends for some pizza.
Typically when we put Sadbh in her car seat, she get’s really fussy. That is until we place her outside on the back porch in full view of the trees and garden.
This seems to have a very calming affect on Sadbh and it looks like she loves the swaying of the branches and the green leaves as they flutter in the wind.
Today was no exception, and as soon as we placed her outside, she was smiling from ear to ear.
When we arrived at the restaurant to meet with our friends Dee, Brain, Aidan and Marie, we also ended up bumping into another friend Luis. Small world.
Sadbh was fast asleep when we arrived, but the restaurant was quite noisy so it wasn’t long before she was wide awake.
That said, it was a good thing as everyone got to spend time holding and doting over our little princess.
She gets so much attention these days, I really hope it doesn’t go to her head.
Tomorrow is going to be a very big day for Sadbh.
At 6:45am, we are scheduled to check into Children’s Hospital for her appointment, and at 8am she is scheduled to be admitted into the Operating Room with her ENT doctor. Dr Inglis will then carry out a bronchoscope in her airway to see how her vocal cords are doing, and also to see if she has any granuloma build up around her trach.
Since Sadbh is growing as a baby, her airway should also be growing, and since her trach remains the same size, there should be some air moving up past the trach and out through her nose and mouth. This is known as a leak.
The last vist we had with Dr. Inglis, he did not notice a leak in her airway, and was concerned that there was a potential for a granuloma build up.
Granuloma is quite common and it’s basically scar tissue build up around the trach on the inside of the airway. This is due to the body fighting a foreign object within.
If there is a build up, Dr. Inglis will remove it tomorrow and we will then schedule a follow up appointment for a later date.
If her airway is clear of any granuloma, then we would discuss fitting Sadbh with a Passy Muir trach which contains a valve system that allows air to flow in, but then pushes the exhaled air out through the nose and mouth.
This would allow Sadbh to manage her own secretions without the need for constant suctioning, and it would also allow her to develop her speech.
Since Sadbh has to go under general anesthetic and then into surgery, she cannot feed after 2am in the morning. As you can imagine, we will have one very unhappy baby throughout most of Monday morning.
Take care and have a great week.
Wayne, Katie and Sadbh.
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