Sadbh slept well but woke up
upset a few times during the night. Helen was able to comfort her back to sleep
easily and Sadbh slept on until 6:15.
She was delighted to see
Katie and knew it was time for a big snuggle.
When Sadbh headed upstairs
with Katie she brought a whole new group of friends. She brought two tigers, a
cat and her kitten, a bear, a bunny and a green “Kipper” dog (with a nappy on).
She was in her element hanging out while Katie got ready for work.
She even got to watch some
monster truck racing.
The weather cleared later in
the morning so Sadbh, Larissa and Amy headed out to play in the garden.
She was so happy to get out
of the house since she has been cooped up all week.
Things got very exciting when
Sadbh spotted a garter snake slithering through the grass. Despite her
excitement she had no desire to stick around to check the snake out.
It was soon time for trach
care but Sadbh was too wound up to stay still for trach care. Larissa and Amy
did not want to run the risk of decannulation so they put Sadbh to bed where
she soon fell into a deep sleep for two hours.
When Sadbh awoke Larissa
noticed that she had a temperature. Sadbh was very fussy and extremely clingy.
Shortly after I arrived home
Sadbh was busy in her room playing with one of her dolls. All of a sudden she
kept closing her bedroom door and when I popped my head in she started acting
very suspicious. I noticed that she was putting one of three nappies on her
doll and that her hands and the dolls bum were covered in Sadbh’s butt paste.
Just before dinner Sadbh got
to Skype with Nana and Granddad and she was busy blowing them kisses and
telling them that she loved them.
Thankfully, by bedtime she
was feeling much better and her temperature seemed normal. I have a feeling
that the last of her teeth are coming through and this could be the source of
her discomfort and higher than normal temperature.
As we were getting Sadbh
ready for bed she kept telling us that she did not want trach care so after
inspecting her neck and cleaning a couple of spots that needed cleaning we
decided to forego it for today. We will manage it first thing in the morning
after she wakes up instead.
We received news from the insurance
company that they have declined our second appeal so our next step is to seek
legal counsel. The fun never ends.
All the best,
Wayne, Katie and Sadbh.
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