Sadbh slept great and her
lungs sounded quite good. She is definitely improving but she is still not yet
100%
By 6:20 she was wide-awake
and in a fantastic mood. Later she was asking for Nini and had a sad face when
she realized that Nini was gone.
She had a great day with Amy
and Larissa and when it came time for her nap she allowed them both to manage
trach care while she was awake.
As soon as she was done she
wanted to be put in her cot where she fell asleep for over two hours.
It was quite the
accomplishment for everyone involved.
The rest of her evening was
spent playing and eating. She can put away a serious amount of food and I often
wonder where it goes.
Getting Sadbh to sleep took
a little effort this evening as she was extremely playful and had no interest
in going to sleep.
Eventually she dozed off
around 9pm.
She managed to tolerate
wearing her cap for over two hours today over a few sessions. One of those
sessions lasted an hour so we are hoping that she will continue to wear her cap
for longer periods of time.
This day two years ago Sadbh
was trached. It was one of the most difficult decisions both Katie and I had
ever made and despite all the challenges over the past two years we know it was
the best thing we ever did.
At times it feels like a
million years ago and other times it feels like it was just yesterday.
I’m just so lucky to have
two amazing women in my life and between the three of us we help each other get
through it all.
All the best,
Wayne, Katie and Sadbh.
No comments:
Post a Comment