Sadbh woke up shortly after
11:30 and was asking Helen for Katie. Helen did a great job in getting Sadbh
back to sleep, first negotiating with her and then letting her listen to Wheels
on the Bus from Helen’s laptop as she drifted back to sleep. The rest of the night was very
uneventful.
Sadbh slept until just after
7am and when she woke up, she wanted to eat Katie’s oat bran cereal (the kind
that Grandad always ate). She
asked to wear her cap first thing and she spent the first hour of the day
playing around upstairs while Katie got ready for work.
Ali-Baba stopped by around 9
and Sadbh was so happy to see her. She again asked to wear her cap and wanted
to show off for Ali-Baba.
They all headed downstairs
for a tea party and to play with Sadbh’s kitchen in the basement. After a late morning snack Sadbh got to
watch The Sound of Music and have a sing-a-long with Ali-Baba. She also got to
help Ali-Baba with her knitting and showed her how she can brush her
teeth. She had a wonderful time
and loved every second.
Trach care went well today,
even with Sadbh awake throughout. She fell asleep afterwards and slept soundly
for a couple of hours.
She was in a fantastic mood
all afternoon and even got out for a walk through the neighborhood.
Just after I arrived home
she picked out her sailor suit and asked if she could wear it. I was able to
bribe her into wearing her cap. She looked adorable and loved walking around
the house.
Bedtime was very easy
tonight since Sadbh was pooped. She had a fun filled evening and just before
going to sleep we gave her a saline nebulizer to loosen up her airway.
It worked great and I was
able to suction her trach clear of dried secretions.
She wore her cap for almost
five hours total today over five sessions. We were all really impressed and hope
that she will continue to tolerate her cap for longer periods from now on.
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