Sadbh had a beautiful night
and slept soundly until 6:30.
Helen mentioned that Sadbh’s
lungs sounded really good and she did not have to suction.
She did not have much of an
appetite today and did not eat much. She did drink a lot of water and kept well
hydrated throughout the day.
Sadbh got to Skype with Nana
and Granddad this morning for almost an hour and she even brought them for a
tour around the house.
She kept asking to see more
photos of her new cousins, Annabelle and Fionn.
The rest of her morning was
spent finger painting.
Trach care went well and
Sadbh was very relaxed throughout. As soon as they were finished she hit the
sack for a couple of hours.
The weather was still bad so
Sadbh did not get to go outside. Instead Amy and Larissa kept her entertained
playing with her bath toys in the water and also playing with bubbles.
We received the follow up
letter from the insurance company with their conclusion on the nursing
coverage. Apparently their ENT doctor, Dr. Raye McIntee, went to a far better
university than Dr, Inglis and I wish we had received Dr. Raye McIntee’s expert
opinion two years ago so both Katie and I would have saved ourselves
unnecessary worry and stress over Sadbh’s condition.
According to Dr. McIntee
Sadbh does not need any professional help and that “she will be able to
tolerate mucous obstruction/decannulation for the period of time it would take
for the family or other trained, non-licensed, caregiver to suction/replace
trach.”
We have already started
researching attorneys so we can continue to fight this decision. Little do they
know but Katie and I are two very stubborn people and we will put up a huge
fight for Sadbh’s wellbeing.
All the best,
Wayne, Katie and Sadbh.
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