Sadbh
slept well and woke up just after 7 very eager to get upstairs to see Mommy. I
was able to keep her downstairs for an hour to allow Katie to sleep in before
finally giving into Sadbh’s demands. She was so happy to see Mommy.
She
had a busy morning Skyping with her cousins in Portland and Nana and Granddad
back in Cork.
Her
cousin Kaito played a few songs for Sadbh on his saxophone and she could not
get enough.
After
Skyping we got trach care done and headed off to Fremont to meet up with
Sadbh’s friends and to go to a pantomime. It was Sadbh’s first and she really
got into it.
Sadbh
really enjoyed hanging out with her friends and when it came time to leave she
was heart broken and she would not stop crying.
It
was a hectic afternoon and Sadbh was wiped out on the trip home.
Spending
time with Sadbh in public settings like the pantomime is very stressful for
Katie and me. We are constantly on the lookout for coughing, snotty nosed kids
and we end up worn out and stressed playing defense to keep Sadbh from catching
a cold. It’s a difficult dilemma, do we keep her home in a bubble isolated from
all her friends and experiences, or do we spend the day running and racing
trying to keep her safe while running the risk of catching a cold. For Sadbh
catching a cold is a lot higher risk that the average kid. It can mean life or
death so we are always over the top trying to keep her safe and healthy.
Her
evening was spent hanging out watching a Christmas movie and playing with her
toys.
When
it came time for bed she had a sudden burst of energy and ran around the house
at least a dozen times.
Thankfully
she fell asleep instantly.
All
the best,
Wayne,
Katie and Sadbh.
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