Sadbh slept great until around 2:30am, and then she started to get restless. Larissa had to suction a few times throughout the rest of the night, and managed to keep her asleep.
She finally woke up at 4:45am, and Katie was called down for breakfast. After breakfast, she had a coughing fit and ended up bringing up some of her food.
After cleaning Sadbh up and putting new clothes on, it did not take long to get her back to sleep, and when I popped my head in to kiss her good by on my way out for work, she was sound asleep.
A few hours later, after her second breakfast, she had another coughing fit and ended up puking up everything all over the kitchen floor.
Katie and my father got her cleaned up and changed again, and my father fed her some cereal, which she kept down.
Sadbh’s nurse today was Kara from Children’s Hospital, and Sadbh had a great time.
We have had so many issues with most of the nurses from the nursing agency, however Su Jin from Children’s has recruited a group of great nurses that can work from time to time, helping out and providing a break for my father.
They are all fantastic with Sadbh, and you can tell that she has a great day when they are around.
It was another lovely day, so Sadbh, my father and Kara headed down to Madison Valley for a stroll.
They arrived home shortly before I did, and when I walked up to the back door of the house, Sadbh was there with a huge smile waiting for me.
Since she had not slept for a few hours, it was time to put her to bed, and despite all her excitement, she fell into a deep sleep in no time.
She woke up almost an hour later and it was perfect timing since Katie had just arrived home.
We had a great evening playing hide and seek, and while I was hiding, Sadbh started to use the baby sign for “daddy”. Needless to say, we were all impressed.
When it came time for bed, Katie noticed that the trach humidifier was not heating up as it should have been. We were worried that we would have to call the medical equipment company out to the house to change the unit, however, after troubleshooting the problem over the phone with our rep, we were able to determine that the temperature probe had gone bad, and we were able to change it out with a spare that we had.
We were very relieved, since the last time this happened, Sadbh’s trach dried out over the course of the night, and she ended up with a bad cold that required constant suctioning.
All the best,
Wayne, Katie and Sadbh.
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