Sadbh had yet another excellent night sleep and did not wake until moments before Larissa’s shift ended at 6am.
Sadbh had her breakfast and afterwards, it was playtime and snuggles with Katie.
Eventually she went back to sleep, and had a very long sleep in.
Later on in the morning, Peggy came by to help my father with trach care. Since Sadbh had such a long sleep in, trach care was later than usual, but everything went well as my father and Peggy waited until she was very tired before starting.
I arrived home later than usual, and Sadbh was taking yet another nap.
This evening we tested out her Passy Muir Valve again, and this time we used the one without the hole punched in it. She did seem to struggle to exhale, however she showed slight signs of air leakage escaping through her mouth.
She struggled and showed signs of distress, so we switched the PMV with the one with the hole. She managed a lot better with that one, however we will start using the PMV without the hole more often so she can start getting used to the pressure on her vocal cords.
Since we do not have nurse care tonight, I’m hoping that she had a good night sleep and doesn’t get too restless.
Take care,
Wayne, Katie and Sadbh.
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