Sadbh had a restless night sleep was awake by 4am Friday morning and was very hungry. After her first feed of the day, she went back to sleep for another three hours.
She had a great morning with Katie and both got to sleep in and relax.
Early in the afternoon, after my father headed to Children’s for his second and final training on trach care and CPR, Katie determined that it was a good time to change out Sadbh’s trach since Sadbh had been awake for quite some time and was ready for her afternoon nap.
It was a stressful task, however everything went extremely well. This was a first for Peggy, and it was also the first time for Katie to insert the new trach.
Even Sadbh didn’t seem to be bothered.
Thankfully for us, we manage Trach Change once a month. For some, it’s carried out every couple of days and I cannot imagine the stress it adds to these unfortunate peoples lives. For us, both Katie and I manage our stress very differently.
We both seem to maintain a low stress composure during trach care and ultimately throughout the task of trach change. However it’s after we have completed the entire task and after Sadbh is put to bed when the signs of stress show.
Katie tends to get emotional and reflects on Sadbh’s vocal cord issue, while I tend to get very angry and end up resenting this entire situation.
Later in the evening, Katie headed out to meet a few of our friends for dinner, and I headed out with Sadbh and my father to meet Gerry and his son Dylan for something to eat at a local kid friendly ale house.
Just before we left to meet Gerry, we had to change Sadbh’s diaper, and I was shocked of what I found in there. Since she has been eating solids more frequently now, specifically bananas, the contents of her diaper were so foul and pungent.
I wanted to take a photo for the record, however Katie sensibilities overruled mine so Sadbh will be saved the embarrassing reminder.
Once Sadbh was all cleaned up and dressed to go out, we headed off.
The Madrona Ale House is famous for being kid friendly, however when we got there, it was very obvious that adults were greatly outnumbered by kids.
So much so, it was hard for Sadbh to sleep and relax, so needless to say, she did not have a good time and demanded constant attention.
Ordinarily this is not an issue, however when you are trying to eat, it can be difficult.
It was great to see Dylan as we had not seen him in such a long time. We were very impressed on how much he has grown.
By the time we got home, Sadbh was very tired so we cleaned her up, dressed her for bed and once her little head hit her mattress, she was out like a light.
Have a great weekend,
Wayne, Katie and Sadbh.
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