Sadbh’s update – March 31st, 2012

Sadbh woke up at 2am and it took Katie almost an hour to get her back to sleep. She slept until 7am, had another snack, and then went back to sleep until 9:45am.

Her secretions require a lot of suctioning this week, so we were up throughout the night suctioning her trach to keep her airway clear.

We think it might be due to her teething and since she is not drooling, she might be swallowing the saliva and it might be coming through her trach.

She had a great morning and devoured a hefty breakfast.

With four of us in the house, she never has to wait for long before someone is ready to play with her. This works great, especially when we want to make sure that she is good and tired when it comes time for trach care.

Her bath was hilarious as she was cracking herself up while checking herself out in the mirror.

When it came time to take a nap, she fell into a deep sleep very quickly and did not budge throughout trach care.

She woke up a few minutes after we were done, so it was then time to get her dressed and then lunch.

Later in the evening, we headed off to meet some of the gang for Sushi in Tangle Town. Sadbh’s friends, Clodagh, Cormac, Dylan and Ixchel.

She was still full of energy when we arrived home, and while Katie and I got all her equipment up, she discovered how to use her car seat as a rocking chair. She had a lot of fun and kept it up so I could take a video. 

Just before bed, Sadbh got to Skype with her family in Singapore.  Her cousin Liberty made funny faces at Sadbh and kept Sadbh laughing.  Meanwhile, Sadbh got to show off some of her new tricks, including standing with no support and blowing kisses.

The excitement of the day wore her out and it did not take long for her to fall asleep.

New photos.

Photos from January 31.

All the best,

Wayne, Katie and Sadbh.

Sadbh’s update – March 30th, 2012

Sadbh slept upstairs last night since we did not have a nurse, and she was a little fussier than usual. She woke up shortly after 11pm, and again at 3am. I woke up to Sadbh tapping me on the shoulder, and it was way too early for playtime.

She had a quick feed, and was bundled back to bed where she slept until 5:30.

Later in the morning, she had an appointment with Dr. Cavanaugh, her cranial sacral specialist.

He felt that her diaphragm was tight, and attributed it to her recent cold. He also commented that the left side of her neck was tight, likely due to the fact that she favors that side to sleep.  He treated her chest, back and neck and she should feel more comfortable and rest better now.

Ali-Baba, Nini and I had a training session scheduled at Children’s for 1pm. Sadbh was only starting to fall asleep for trach care at 12:30, so I stayed behind to help Katie.  Ali-Baba and Nini headed off for training. We were hoping to have trach care taken care of earlier in the day, however Sadbh dictates her schedule, and we simply have to follow along.

Trach care was easy enough, and Sadbh slept for almost an hour afterwards.

Shortly after waking up, it was time for something to eat, and then it was time for play with Katie and myself.

She was having a ball, and when she thought things could not get any better, along came Cormac, Clodagh, Suzie, Conor and Aoife.

She had a great time with her friends. All four kids were sitting on the couch while their proud mommies took photos, when all of a sudden Cormac started to cry. Sadbh was intrigued at first, but then started to cry, until she looked over at Conor and noticed that he was smiling and having a good time. With that, she figured that things were not too bad, so she decided to smile along with Conor.

Sadbh was very tired after her friends left, so it was time for nap.

When she woke up, we figured it was time to test her Passy Muir Valve to see how she would manage it, and she did better than expected.

She did not tolerate it for long, but she did make some sounds through her mouth. She even made the baby sign for more at one stage, but eventually she got tired of it so we called it quits for the night.

She took a couple of shaky steps today, and impressed the socks off of us. That said, we should start to scale back on trying to get her to walk, because as soon as she does, we are going to be chasing her all over the house.

New photos.

Photos from January 30.

Have a great weekend,

Wayne, Katie and Sadbh.

Sadbh’s update – March 29th, 2012

Sadbh had a better than expected night sleep and did not wake until 5:30. Larissa did have to suction Sadbh’s trach every hour, but it helped keep Sadbh comfortable.

Nini’s boyfriend, Chris arrived last night for a holiday, and when Sadbh met him this morning, she flirted with him like crazy.

Sadbh had a new nurse start today, Abbie. She has a lot of experience with children with airway issues, so she is perfect for looking after Sadbh.

Sadbh had a fantastic day today, and was a lot more comfortable than she was yesterday. Between Nini, Chris and Abbie, she received a lot of attention and had plenty of people to play with. So much so, she skipped her afternoon nap.

By dinnertime, she was completely exhausted. She still managed to impress everyone by spotting two airplanes through the window flying high in the sky.  She was playing with three binkies at a time and when we all got very excited, she suddenly got scared and burst into tears.

It was time for bed, and thankfully it did not take long for her to fall asleep.

New photos.

Photos from January 29.

All the best,

Wayne, Katie and Sadbh.

Sadbh’s update – March 28th, 2012

Sadbh was a little restless throughout the night, but slept right through until 6am.

This worked out great as her final feeding before surgery was 6:30am. As soon as Sadbh was awake, Katie fed her and then it was back to sleep until 7:30.

This was a trickier wake up since she is usually a lot hungrier after her second wake up.

We had our work cut out for us trying to keep her occupied and distracted from wanting to eat. She was allowed water until 8:30, and this seemed to do the trick.

Just before we headed off to the hospital, Sadbh got a chance to Skype with Granddad and Nana in Cork. She got so excited when she saw Granddad on the computer. She could not stop smiling. It certainly helped keep her mind off of food.

She was in an excellent mood all morning and it continued when we arrived at the hospital. She was full of smiles for all the staff and did not fuss once. It was amazing how good she was, considering that she had not eaten in over 3 hours.

It was almost like she knew what to do. When the nurse was taking her blood pressure, she held out her arm and waited as if she did this on a regular basis.

We met with the anesthesiologist team and went over all the details on putting Sadbh under.

Afterwards, we met with Dr. Inglis to go over the procedure. He started off by playing peek-a-boo with Sadbh, he’s quite the character.

Katie was invited to accompany Sadbh into the theater and to comfort her until they put her under. This seemed to work well in keeping Sadbh nice and content until she was under anesthetic.

Approximately 50 minutes had passed when our pager went off, letting us know that surgery was over and that we were to meet with Dr. Inglis.

As you could imagine, we were both very nervous throughout the whole morning, and the wait seemed to drag on for ages.

Dr. Inglis arrived in the consulting room, and had a very happy smile on his face.

The procedure went really well and he succeeded in removing a medium sized granuloma from the inside of her stoma, right above the trach. Looking at the image on the top right hand corner of this photo, you can see the granuloma, and where Dr. Inglis has removed it by laser in the image below.

He then checked her vocal cords and observed that they were still shutting closed. He believes that they close tight, even when they are supposed to be opening.

With that, he injected Botox into the muscles that cause the vocal cords to close.

The hope is that they should start to open within a week, and if that works, we will be able to start work on her speech development.

He wants us to come back in a month so he can check on the progress.

We then headed back to the recovery room and waited for our princess to arrive. Eventually she was brought into our room, and she looked pale and really weak. Katie instantly noticed that her trach ties were very loose and not secure. Her trach was almost coming out of her neck.

Katie did a great job of holding Sadbh and keeping her calm, and I managed to get the ties secured.

Our nurse called Dr. Inglis to let him know that there was an issue, and he came right down to check in with us. He was very apologetic and reassured us that he was going to follow up with his team.

By now, Sadbh was fast asleep and she started to get some color back.

Her heart rate was a lot higher than normal, but she slept sound for ages. Unfortunately she needed a lot of suctioning and had the occasional coughing fit.

Eventually, she woke up and it was time for a feed. Once fed, she was back to sleep.

Our nurse was after completing our discharge papers and once Sadbh’s IV was removed, we were off out the door and homebound.

Not long after arriving home, Sadbh started a coughing fit and ended up barfing up all her food.

After cleaning Sadbh up, she got to Skype with my parents again back in Cork for almost an hour.

Afterwards, Katie fed Sadbh again and she kept it down.  A bit later, we tried to give her a bit of apple & oatmeal.  While Sadbh was eating, she received a call from Katie’s brother and his family in Singapore. Unfortunately she ended up getting sick again, so we had to end the call to take care of her.

It did not take long to clean her up, and we called Karby back. Karby chatted to Sadbh over the speakerphone and she was full of smiles. She even got to hear her nieces Liberty, Belle Rose and Trinity tell her that they love her.

She definitely had an off day after the surgery, but considering everything that she had been through, she is such an amazing child. Katie and I were so surprised how calm and relaxed she was prior to her surgery, and how good she was afterwards.

She is a great kid and has certainly taught us a few lessons in life. We are so proud of her.

New photos.

Photos from January 28.

Thank you all for the well wishes, prayers and positive thoughts today.

Wayne, Katie and Princess Sadbh.

Sadbh’s update – March 27th, 2012

Sadbh slept great and did not wake until shortly after 5am.

Just before she woke up, Larissa noticed that Sadbh was making the baby sign for banana while in her sleep.

Katie came down to feed Sadbh, and afterwards she fell back to sleep until 7:50.

Destiny was working today, and Sadbh was delighted to see her arrive. It’s playtime and Sadbh had a lot of fun with both Destiny and Nini.

It turns out that Sadbh has quite the appetite today, and at one stage she even tries to eat Nini’s arms.

During playtime today, she stood by herself for 5 seconds, so we know it’s not going to be long before she is walking.

Nini noticed that Sadbh kept looking down the stairs today, waiting for Granddad to come. Even though she is so young, it’s obvious that she misses Grandad Gerry. We all do.

Ali-Baba came over to play and help with trach care, and Sadbh was over the moon when she saw her.

Trach care was very straightforward and Sadbh slept for almost an hour and a half afterwards.

She was starving when she woke up, and downed a whole bottle of milk in one go.

Nini is now the new cook at the Green Spoon Restaurant, and fresh on the menu today was spinach with mushrooms and potatoes. Sadbh gobbled it right up and when she was done, she was still hungry. It was time for some chicken and sweet potatoes, and afterwards she even had room for apple yogurt.

By the time I got home from work, Sadbh had been awake for a while and was running on fumes. We tried to get her to take a nap, but she was not having any of it.

She was having way too much fun, and taking a nap was the last thing that she wanted to do. After an hour or so, she had no choice but to surrender, and it was off to bed for her.

She slept for 40 minutes and it was perfect timing for dinner. Her appetite was still ferocious and she devoured everything that was put in front of her.

Since she has surgery tomorrow morning, we had to give her a bath tonight, using a chlorhexidine gluconate soap (CHG). This soap is used to cleanse her skin of any germs prior to going into surgery.

It is very potent stuff and she was not happy receiving such a thorough scrubbing.

When it came time for bed, she was exhausted and passed out without any difficulty.

Tomorrow is going to be a very busy day, so we hope she get’s a good night sleep.

Her check in time tomorrow at Children’s is 9:25am, and her surgery is scheduled an hour later.

Katie and I have carried out extensive research on Botox and this procedure, and we have made the decision to go through with it.

Of course, there is always risk, however we have confidence in Dr. Inglis and feel that this will benefit Sadbh in many ways.

New photos.

Photos from January 27.

Take care,

Wayne, Katie and Sadbh.

Sadbh’s update – March 26th, 2012

Sadbh slept well, but got wedged in the corner of her cot and ended up waking up shortly after 1am. We couldn’t find her binky quick enough, so Katie had to give her a quick snack to comfort her.

She slept great until 5 and then woke up for breakfast.

Then it was back to sleep until 6:30, another quick snack before going back to sleep until 7:50.

Sadbh had a great day playing with Granddad. He is fantastic with Sadbh and knows exactly what she wants, and when she wants it.

Granddad’s last entry into the journal today is as follows.

Monday 26^TH March, 2012

Nini takes over today, so Au Revoir mon enfant, my darling Sadbh. XXXX

It was a very sad and emotional farewell at the airport today. Both my father and mother have sacrificed so much for the past six months to help us out caring for Sadbh.

Last Friday, the nursing agency had one of their coordinators come by the house for their monthly recertification and after going through their infant development tests with Sadbh, determined that she is almost 3 months ahead in her development.

We believe that Granddad was instrumental in Sadbh’s development and, without his help, Sadbh would not have made as much progress.

We are eternally grateful for everything my parents have done for Sadbh and us, and consider ourselves so very lucky.

Thank you mom and dad, we love you both so much!

Thankfully, they will be back in two weeks for Sadbh’s birthday.

New photos.

Photos from January 26.

Take care,

Wayne, Katie and Sadbh.

Sadbh’s update – day 349 March 25th, 2012

Sadbh had another great night sleep and did not join us in bed until after 4am, at which time, breakfast was served.

As soon as she was done, she was back to sleep, and cuddled up to me for the next few hours. Usually she sleeps across the bed, with her head in my side, and her feet kicking Katie. This morning, she was snuggled up against me and did not budge for ages.

By 8am, Sadbh was wide-awake and ready for action.

Her nappy smelt very ripe, so it did not take long for us to get motivated.

After a change and breakfast, her morning was spent playing with Granddad and Nini.

We Skyped with Nini’s parents and sister Kati in Munich. Karina, Nini’s mother, is an ENT doctor who specializes in Homeopathy, so we discussed in detail the Botox procedure that we are facing this week.

Karina has been extremely supportive since day one, and has provided us with a lot of expert advice and options.

Katie and I are still weighing or options and we are leaning towards going forward with the Botox treatment.

Just before noon, Sadbh started to tire, so it was time for trach care.

She was exhausted, allowing Katie and my father to carry out trach care quite easily. She slept for almost an hour, and had lunch after she woke up.

As soon as she was done feeding, it was time to jump in the car and head over to Ballard to meet up with some friends for lunch. Ballard was packed due to the Sunday market and the fact that it was such a beautiful day. We found an Italian restaurant and it was perfect.

Sadbh had a delicious variety of goodies for lunch, however this time she threw up a couple of times.

It has to be said, if an adult got sick while out in a bar or restaurant, they would get shown the door fairly quickly. However, as soon as Sadbh got sick, she received a few oohs and ahs.

Aidan showed Sadbh some moves, and was very keen to play with her.

After lunch, we headed over to visit Ali-Baba and Kirk.

Sadbh slept for about 20 minutes on the way over.

She woke up when we arrived, and it was time for a light snack. When it came time to change her nappy, it took two people to try and contain her, and eventually Katie had to put the nappy on with Sadbh standing up.

Sadbh had a great time at Ali-Baba’s house, and was so full of energy.

Neil stopped by the house tonight to say good-bye to my father, and at one stage when he was holding Sadbh she got very upset.

She was wiped out when it came to bedtime, and started to fall asleep as soon as we got her pajamas on.

We do not have a nurse tonight, so we are hoping that she sleeps throughout the night, so we can all get a good nights rest.

New photos.

Photos from January 25.

All the best,

Wayne, Katie and Sadbh.

Sadbh’s update – day 348 March 24th, 2012

Sadbh slept right through until 5am, and went back to sleep after a quick snack.

Around 8am, I felt a tapping on my shoulder, and there was Sadbh with the biggest smile when I turned around.

She was in a very happy mood and was full of fun.

During breakfast, Sadbh started making the baby sign for banana and it was very impressive.

Trach care was very straightforward today, since she had missed her morning nap and was exhausted tired.

As soon as we were done with trach care, we brought her upstairs to her cot in our room, and she slept on for another hour.

As my father watched over Sadbh on the baby monitor while she slept, he noticed that she was pointing in the air making the no gesture, all while sleeping.

When she finally woke up, it was time for lunch and then we were off to the Space Needle to see the Angry Bird attached to the side of it. It was like Princess Angry Bird meets Angry Bird, however we could not find Princess Angry Bird anywhere.

Once done checking out the Angry Bird display, we were off to Greenlake for a walk.

It was a beautiful day, and Sadbh was in her element checking out everything. It was great to see how happy she was and she just kept smiling and waving at everyone.

We always seem to bump into our friends Barry and Heather with their two dogs when at Greenlake, and today was no exception. Interestingly, Sadbh started to make the baby sign for dog.

It was after 5 by the time we got home, and since Sadbh had not napped since trach care, we had to work to keep her awake until her bedtime.

It was fairly easy at first since she got to Skype with her cousins in New Zealand, and got to see her cousin Conor, dressed as a leprechaun with his green beard that he wore on St. Patrick’s day.

When bedtime finally arrived, she had no problem falling to sleep and was out for the count in no time whatsoever.

Nini has received the seal of approval from Sadbh, as she received a big wet, open mouth kiss from Sadbh today.

New photos.

Photos from January 24.

All the best,

Wayne, Katie and Sadbh.

Sadbh’s update – day 347 March 23rd, 2012

Sadbh slept quite well, but woke up around 12:20. Katie fed her, and both of them fell asleep sitting up. Shortly afterwards, Katie put Sadbh back in her cot, and the both slept through to 6.

Sadbh had a very busy day and got to experience Ikea for the first time with Katie, Ali-Baba, Granddad and Nini. Thankfully I was working today, so I was spared the Ikea ordeal.

Ikea has a recycle program for Styrofoam and the likes, so we recycled her wedge since she is now sleeping on a regular mattress. 

Trach care was much later than usual today, and it took forever to get Sadbh to sleep. She was so worked up, and kept crying the whole time. She finally fell into a deep sleep, allowing us to manage trach care without any difficulties.

After her nap, we all headed out to meet Derek, Suzie, Clodagh and Cormac for some Thai food in North Seattle.

Sadbh had a great time, and even got to taste fried rice and ginger.

She was exhausted when we arrived home, and it did not take much to get her to bed and into a deep sleep.

New photos.

Photos from January 23.

All the best,

Wayne, Katie and Sadbh.

Sadbh’s update – day 346 March 22nd, 2012

Sadbh had another really good night sleep. A little more restless than the night before, but she slept right through and did not wake until 5:30.

She was in a playful mood when she woke up, and played with Larissa for almost 15 minutes before Katie was called down for breakfast.

Here is my father’s journal entry for today.

Thursday 22^nd March 2012

“Sadbh had a fairly good night sleep and wakes up happy at 08:20.

Mommy feeds her, and after getting dressed, Sadbh enjoyed her cereal & banana.

During playtime, Sadbh has the occasional sip of water and some cheerios.

11:00 Sadbh has some apple & pear puree. More playtime until she gets tired.

Bath 11:50 Sleep 12:05 Trach care went very well. 13:10 Sadbh wakes up and can’t wait for her bottle.

She drinks it all up without stopping. After some playtime, Sadbh is in for a treat. Nini will be managing the Green Spoon (restaurant) from now on, and she cooked up a special for Sadbh. Chicken, sweet potato, apple & onion. Sadbh loved it. She also had some carrot, and for desert, apple & pear.

Sadbh, Nini, Destiny and Granddad all went for a nice long walk in the sunshine and Sadbh fell asleep at 16:20”.

Sadbh had a nice relaxing sleep and kept snoozing while in her stroller, even after she arrived home.

She was a little bit irritated when she woke up, but it was nothing that a bottle would not sort out.

I had a great evening playing with Sadbh. She was in such a fantastic mood and full of energy.

Nini is really getting into the swing of things and is really good with Sadbh.

After dinner, Sadbh had another coughing fit and ended up barfing up her dinner.

When it came time for bed, it took almost an hour to get Sadbh settled in.

We don’t have a nurse this evening, so Sadbh is sleeping upstairs with us.

New photos.

Photos from January 22.

All the best,

Wayne, Katie and Sadbh.

Sadbh’s update – day 345 March 21st, 2012

Sadbh slept great through the night, and only needed to be suctioned once.

She slept sound from 8:30pm, until 7am.

As you could imagine, she was starving when she woke up, so Katie did not hesitate in serving breakfast. After Sadbh was done eating, she was ready to go back to sleep, when all of a sudden she had a coughing fit, and ended up getting sick all over herself, Katie and her bed.

Everything had to be changed, and after all the excitement, Sadbh was ready to play.

Destiny was working again today, so Sadbh had a great doing the rounds for playtime.

Here is my father’s journal entry for today.

Wednesday 21^st March 2012

“Sadbh had a lovely long sleep last night, and didn’t wake up until around 7am. Unfortunately after Mummy fed her, she barfed it all up again.

Usually, she sleeps after Mummy’s pie in the morning, but today she wanted to play. So after cereal and bananas, some playtime with Nini & Destiny & Granddad, Sadbh takes a well-earned nap at 9am.

She sleeps until 10:30.

Nini fed her 5oz of Momma’s milk, and afterwards Sadbh had some freshly stewed apples & pear with cereal.

Loads of playtime, even a walk in the garden, ensures that Sadbh is ready for a bath at 13:15. 13:30 fast asleep and trach care goes without a hitch. Stats very good 98/114 (Blood Oxygen Level/Heart Rate).

15:25 Sadbh is certainly enjoying her naps today, now she is ready for another bottle of mummy’s best.

More playtime with Nini & Destiny, then Sadbh orders her favorite chicken & carrot in the Green Spoon Restaurant. Still a bit peckish, she finishes with half an avocado, mashed.

16:30 Daddy arrives home and Sadbh has some fun time with him.

Mommy arrives home at 19:10 and feeds Sadbh pea & carrot soup, then stewed apple & pear. Oh-oh, second vomit today, Sadbh brought back up all her pea & carrot soup and stewed apple & pear.

We suspect as Sadbh was munching a small piece of cheese during feeding, that one or more pieces got stuck in her throat and made her vomit.

Afterwards she was all smiles and had some more food, apple & pear – carrot – onion – celery – tomato”.

Sadbh had a great day today, and was full of happiness and smiles. It seems that she is finally over the worst of her cold.

Occasionally she has fits of coughing, and if she has just been fed, she usually get’s sick.

Bedtime was a little later than usual tonight, and she got to wear the cutest two piece pajamas. We were just about to bundle her up, when she had a huge coughing fit, and before we could suction her trach, she got sick everywhere.

Worst of all, she got sick into her trach and ended up covering the poly-membrane and trach ties.

Katie quickly suctioned her trach, and despite it being well past her bedtime, we had to manage trach care, for the second time today.

It took a while to get her settled in and off to sleep, but once she was asleep, trach care was very quick.

It ended up being a stressful evening, however Sadbh was happy and comfortable, so I suppose that’s all that matters.

New photos.

Photos from January 21.

Take care,

Wayne, Katie and Sadbh.

Sadbh’s update – day 344 March 20th, 2012

Sadbh had a rough night and Larissa was busy making her as comfortable as possible with lots of suctioning. Sadbh spent most of the night coughing hard, her blood oxygen level was low and her heart rate was much higher than usual.

We talked with Sadbh’s pediatrician today, and it sounds like this is normal since she is still recovering from a cold.

This is my father’s last week looking after Sadbh, and every day he keeps a detailed journal of Sadbh’s sleeping, eating, pooping and play activities.

For the rest of the week, I’m going to include his daily log in thanks for everything he has done for us over the past six months.

These journal entries are usually shorter on the days that we have a nurse, and document Sadbh’s day after the night nurse has left, and once his shift begins.

Tuesday, 20^th March, 2012

“Sadbh slept well but with some breathing difficulty, until 08:45. When she woke up, she must have thought she was in heaven, ‘cause Momma, Nini and Destiny were all cooing to her! This morning Sadbh is not her 100% self, but seems to be improving.

After breakfast, she plays with Nini and Destiny.

11:40 Bath. 11:55 Sleep, then trach care. This time Sadbh slept very well, her stats 97/122 were very good, and she didn’t wake until 13:20.

Sadbh woke up very happy, and Nini gave her 5oz of Mamma’s best.

At 14:30, after some playtime, Sadbh had some chicken and carrot, which she loved and ate it all up!

More playtime until 15:20 when Sadbh fell fast asleep.

16:10 Sadbh wakes up unhappy, but after 4oz of Mamma’s best, she’s happy again.

Later on she enjoys some banana-peach-raspberry puree”.

Over the last few days, we have been teaching Sadbh how to blow kisses and also how to stand without support. Today she finally got the blowing kisses figured out and was blowing kisses for anyone who asked. And later on in the evening, she stood by herself for almost 10 seconds. She had a look of sheer excitement and pride on her face.

Just before bedtime, she Skyped with her cousins in Portland, and really impressed everyone when she started blowing them kisses.

Sadbh has an appointment at Children’s Hospital on March 28^th with Dr. Inglis for a laryngoscopy and during this procedure he will look to see if there is growth of scar tissue above her stoma, and if necessary he will laser remove it so it should open up her airway.

During this visit, Dr. Inglis is also planning on injecting Botox into the muscles that close Sadbh’s vocal cords, and this should cause them to weaken resulting in her vocal cords opening.

This procedure is not to resolve her paralyzed vocal cords, but to create enough of an opening in her air way so we can start to use the Passy Muir Valve, allowing us to start working on her speech development.

This procedure has not been carried out on anyone of Sadbh’s age before, so we are really nervous and we are not sure if we will go forward with it or not.

Thankfully, Dr. Inglis has been very supportive and has offered us the opportunity to postpone this until we are ready.

As you can imagine, we have carried out extensive research on this and our findings leave us just as confused and uncertain.

To add to the confusion, we received a letter from the insurance company over the weekend explaining that they will not cover the costs of this procedure since it has yet to be proven that this will resolve the issue.

After a call with our insurance representative today, it turns out that they will cover this, and they are pulling together documentation for us on case studies since it is a proven procedure.

We hope to learn more in the coming days and to become comfortable with whatever decision we end up making.

New photos.

Photos from January 20.

All the best,

Wayne, Katie and Sadbh.