Sadbh slept through the night and woke up happy at 5:30am. After breakfast, she had a few minutes of snuggle time with Katie and me.
Shortly after Larissa’s shift ended, Sadbh was bundled up and went back to sleep.
Sadbh was scheduled to have a nurse today, however Katie received a text yesterday explaining that the nurse was feeling flu symptoms, so she cancelled since she did not want to get Sadbh sick.
After breakfast, Sadbh spent the morning playing in the sunshine with Granddad and she had a fantastic time.
At one point she was trying to put on a pair of lovely shoes that she got from our friends Brian, Breffini and Saoirse back in Ireland. It was very entertaining to watch since espadrilles are not easy to put on, especially when you are 11 months old.
Just after noon, Katie arrived home to help Granddad with trach care, and Sadbh slept for almost two hours.
We were finally able to get the doctors order to lower the heart rate the settings on Sadbh’s oximeter and the service technician was scheduled to stop by to make the adjustment.
Unfortunately for Sadbh and my father, the technician did not arrive until later in the day, so it was late by the time they got to go out for a walk through the neighborhood.
It was another beautiful day, and Sadbh was checking everything out. Even when a plane would fly past overhead, she would follow it through the sky as she waved.
Sadbh had a great evening and when it came time for bed, she was exhausted. It was obvious that she was overly tired as she had so much energy and was flying around the house.
Once we placed her in cot upstairs, she passed out within minutes.
She has been great sleeping without being swaddled up tight over the last couple of nights, and last night she did great sleeping without her wedge.
Obviously Larissa was keeping a close eye on her and making sure that she stayed comfortable and safe by keeping her trach mist collar in the correct position.
Since she is sleeping upstairs with us tonight, I am hoping that she sleeps well.
We are scheduled to change out her trach this weekend, and hope to get it done early tomorrow evening. It’s always a nerve-wracking procedure, so we are eager to get it taken care of sooner rather than later.
All the best,
Wayne, Katie and Sadbh.
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