Sadbh had a very rough night and thankfully we had a nurse looking after her.
Since her temperature and heart rate were so high when she went to bed, we gave her some Tylenol and it seemed to help.
Sadbh was definitely coming down with something, and Molly had to suction her trach constantly. She was awake at 1:50am and asking for Mommy. Katie came downstairs and snuggled her back to sleep.
Sadbh then slept fairly well from 2am until after 7am. And then it was time for breakfast. Shorty afterwards, she barfed everything up.
Overall, she had a miserable day and she had a hard time keeping her food down after each feeding.
Sadbh’s schedule was totally off today, and as a result, trach care was managed much later in the day. My father and Sadbh’s nurse Kara started working on cleaning her neck, and as soon as her trach ties were removed, Sadbh woke up and got very upset.
It took a lot of effort to get her calmed down and back to sleep before they could finish the job. It was extremely stressful for both of them since Sadbh was all over the place, and her trach ties were not secure the whole time.
She started to feel a little better later in the evening, but I think we are going to be in for a long night.
All the best,
Wayne, Katie and Sadbh.
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