Sadbh slept like a log and woke up just as Jirapa’s
shift was coming to an end.
She was in an excellent mood when I took over and
wanted me to pretend that I was a monster so we played for a while until it was
finally time to get up and have breakfast.
Sadbh’s morning started off well but things got very
ugly after breakfast. When Katie headed up to shower Sadbh got very upset and
wanted to go with her. I was hoping to get her home schooling under way but she
fought me tooth and nail. It was a serious melt down and despite all my best
efforts I could not get her to calm down. I stood my ground and would not let
her go upstairs so we had to wait until Katie came down. As soon as she did
Sadbh calmed down immediately.
We had a big chat about what had happened, what went
wrong and how we could manage ourselves the next time and for the rest of the
day Sadbh was in a great mood and very well behaved.
After school and trach care we headed downtown to the
waterfront for a ride on the Seattle Great Wheel. Sadbh was so excited and
could not wait to get on.
Since we could not take the stroller on I carried all
her equipment from the car to the Ferris and since the entire waterfront is
under construction it ended up being a very long walk.
The Ferris wheel was a lot of fun and Sadbh was
completely blown away with the incredible views all around.
After that she got to ride on the carousel and was
just as impressed. Just before she got on the horse she did the same exercises
that she did when horse riding last weekend.
Cillian was asleep the entire time so he missed out
on the excitement.
As Sadbh was getting ready for bed she wanted to send
her friend Grace a message on Katie’s phone. She showed Grace the foot that he
has her Oximeter attached to and her humidifier mask and hose, which she called
her elephant trunk. It was very sweet and funny.
All
the best,
Wayne, Katie, Sadbh and Cillian
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