Sadbh had a much better night and woke up not long
after seven.
We had Sadbh’s cranial sacral appointment first thing
so it was all systems go.
Her appointment went well and Dr. Cavanaugh was able
to relieve the tightness along her ribcage caused by the extra work she has to
perform to breathe.
We also had an appointment for Cillian and Sadbh was
very well behaved while we waited for Dr. Cavanaugh to work his magic on
Cillian.
Once home Sadbh had a bath and then it was time for
trach care. She loves her baths and if she got her way she would spend hours in
there.
The sun eventually came out so we decided to get out
for a walk and to get some fresh air. Before we left Sadbh got to chat with
Nana and Granddad and she told them all about the great things that she was
baking in her toy oven. They were about to go to sleep so Sadbh told them to
have a good night and to dream about her.
It was so good to get out of the house especially
since Sadbh was starting to become difficult.
Shortly after leaving the house she got very upset
because we forgot to bring her snacks to eat and she only calmed down after
Katie removed her trach cap and agreed to check with Sadbh to see if she wants
snacks on her next trip.
Some days are better than others but today she and I
knocked heads over and over.
It can be extremely challenging and by the end of the
day both of us are exhausted.
All
the best,
Wayne, Katie, Sadbh and Cillian
No comments:
Post a Comment