According to Jirapa, Sadbh had a great night sleep
and woke up around six for a few minutes. She fell back to sleep and did not
wake until eight. She was in a great mood and asked if I was sitting with her
since Jirapa left. She is so used to having someone sitting in the room with
her that she now fears sleeping in the room alone.
She definitely woke up on the right side of the bed
this morning but later in the morning her mood changed and it was on and off
all day.
Sadbh’s day started off full of smiles and cuddles.
She could not wait to try on the new dress that we got her yesterday and she
even did her best not to spill any food on it while eating breakfast.
Later in the morning we headed off to see Ali-Baba
and Kirk for lunch. As soon as the car was loaded up I received a call
confirming a doctors appointment for Cillian for next week. Sadbh had one of
her “Frozen” toys that plays the theme song. She kept playing it over and over
and despite being asked by both Katie and I she would not stop playing it. At
one point as I was trying to talk on the phone I pleaded with her to stop and
she just gave me a defiant stare and kept pressing the button for the music to
play. It was extremely irritating and she came very close to having the toy
thrown out the window.
Sadbh was delighted to see Ali-Baba and Kirk and was
full of stories as we ate lunch. I had to take care of a few things at home so
I left the gang with Ali-Baba and headed off. Sadbh was thrilled and she spent
the following couple of hours having fun.
Knowing that Sadbh might be tired when heading home I
was armed with a movie to keep her entertained. This worked out well and Sadbh
was less annoying for the long trip home.
The rest of the evening was a battle and Sadbh took
turns on both Katie and me.
We were fortunate to get trach care done without
incident and as soon as we finished up we got Sadbh ready for bed. Katie and
Sadbh played Lego for a while and thankfully she was out like a light in record
time.
All
the best,
Wayne, Katie, Sadbh and Cillian
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