I forgot to mention in yesterdays post that as we
were entering the butterfly exhibit at the Pacific Science Center we had to
pass through two sets of doors that were separated by a room so as not to allow
any butterflies to escape. While going through this transition we were given a
run down on the do’s and don’ts by an official. He explained that we were to
look where we stepped as not to crush any of the butterflies that happened to
be resting on the floor and not to touch any with our hands as this could harm
the butterflies. He then demonstrated what to do if a butterfly landed on our
head by throwing a huge fluffy toy butterfly on to Sadbh’s head. It caught
Katie and I off guard and any chance of keeping Sadbh away from potential germs
were out the window.
He then encouraged Sadbh to slowly shake the toy
butterfly off causing it to land on the floor. I’m certain that Sadbh was probably
one of numerous kids that exercised this “butterfly removal” technique today
and it’s highly unlikely that this toy butterfly ever gets cleaned.
Anyway, Sadbh slept great but woke up at six rearing
to go. She hung out with Harjinder until seven and was up the stairs like a
flash and into bed for a cuddle with Cillian.
Harjinder hung out downstairs until half past seven
when Katie signed her out.
We had a good start to the day and since it was time
for her monthly trach change she was very excited. Earlier in the week she had
picked out a new toy. She picked the doll Rapunzel from one of her favorite
movies, Tangled, and she could not stop looking at the doll in it’s packaging
all morning.
Occasionally, Sadbh would act up and both of us would
knock heads. It was very trying for a couple of hours. In the end we all had a
good talk and the rest of the day was great.
Ali-Baba and Kirk came by and Sadbh was so happy to
see them. After a few snuggles it was time for a bath and then trach care and
trach change. Sadbh was very enthusiastic, as she could not wait to get her new
doll.
Everything went well and as soon as Sadbh was dressed
she got to play with her new doll. Unfortunately the doll’s dress was covered
in glitter and since glitter can be very dangerous for Sadbh’s trach I had to
remove the dress and wash it to remove any loose glitter.
The rest of Sadbh’s day was fun and this evening she
got to watch the movie Tangled with her new doll, Rapunzel. She was so excited
to show Rapunzel the movie.
By bedtime she was exhausted and ready to hit the
sack.
All
the best,
Wayne, Katie, Sadbh and Cillian
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