Sadbh’s update – May 31st 2014

Sadbh woke up at 5 this morning and started chatting with Danielle about pink cupcakes. After a lengthy conversation she finally fell back to sleep just before 6 and slept on until almost 9.

Both Sadbh and I had a fun morning. When Katie returned from yoga we managed trach care and got ready to head over to Theresa and Orla’s house for a fun day with our friends.

Sadbh was very excited and she got to spend the afternoon playing with all her friends.

Theresa and Orla have a huge back garden and set up fun activities to keep the kids entertained. Sadbh spent the time bathing a bunch of dolls that she found and managed to not to fall into the wading pool.

She was fairly tired when it came time to head home and thankfully she fell asleep moments before Danielle arrived.

New photos.

Photos from May 31 2011.

Photos from May 31 2012.

Photos from May 31 2013.

All the best,

Wayne, Katie and Sadbh.

Sadbh’s update – May 30th 2014

Sadbh managed only 4 hours last night and it was quite the effort. She woke up shortly before eight and was still very sleepy.

We had an appointment with Sadbh’s cranial sacral doctor, Dr. Cavanaugh, this morning and Sadbh was very cooperative.  

He could tell that her diaphragm was compressed from having to work harder to breathe so he focused on releasing that along with the muscles around her neck and her vocal cords.

Sadbh and I had a wonderful day and after her doctors visit we headed to the playground down by Garfield High School. Sadbh is getting so much better on the monkey bars and all the other activities on the playground.

She was wiped out by the time we got home and fell into a nice deep sleep after a bath. She slept for over an hour and a half with her trach cap on.

Later in the evening we headed over to Wallingford to meet up with some friends for a picnic. Sadbh was thrilled to get to play with Clodagh, Cormac, Ixchel and Aidan.

Bedtime was not so easy and it took Sadbh forever to get to sleep. She finally fell asleep almost half an hour after Danielle arrived and it was just in time as I was running out of things to say to Danielle.

New photos.

Photos from May 30 2011.

Photos from May 30 2012.

Photos from May 30 2013.

All the best,

Wayne, Katie and Sadbh.

Sadbh’s update – May 29th 2014

It was a battle to cap Sadbh’s trach but Helen succeeded in capping for just over four hours. Sadbh still got a good night sleep and woke up moments before Helen’s shift ended.

She was in a good mood when she woke up and was quick to snuggle up to me as Helen gave me the night’s report.

We had a busy day as our Medicaid case manager came by to provide us an update on our application and to have a few more documents filled out.

Sadbh was very restless during this time and wanted me to play with her rather than alone as I worked on the paperwork.

Later we headed out to get the shopping done and run a few errands. Sadbh was in a good mood but by the time we got home she was extremely bored and restless.

Just before dinner we were talking about the possibility of Sophia returning for a visit during the summer and Sadbh asked if she was coming back to collect her socks that she forgot. It was so funny and she had Katie and I both in hysterics.

Trach care went well and Sadbh fell asleep moments later.

New photos.

Photos from May 29 2011.

Photos from May 29 2012.

Photos from May 29 2013.

All the best,

Wayne, Katie and Sadbh.

Sadbh’s update – May 28th 2014

Sadbh did just over 5 hours with her trach capped however she did not want to wear it after she woke up. I had to talk her into wearing it as I knew she could have. As soon as she was up and running she was fine with the cap and had no problems breathing.

We had a fun day and after arts and crafts we loaded up the red wagon and headed out for a very long walk. Sadbh wasn’t sure about the weather so she bundled up with a hat, snow gloves and her big heavy rain jacket as if it was the middle of winter. She jumped into the wagon, buckled up her seatbelt and waited until I was ready to haul her off up to Madrona and beyond. She occasionally called out for me to “giddy up” especially when climbing steep hills.

At one point we passed a house that was playing Bjork’s song “Jóga” really loudly. As we passed Sadbh told me that she really likes this song. 

Sadbh was delighted when we finally arrived at the playground in Madrona. She spent the next hour jumping from one jungle gym to another and she had a fantastic time.

On our way home she insisted on going to Nora’s Wood. When we arrived she took off running up into the woods and had me running after her while pulling the wagon full of all her equipment. It was quite the workout.

The rest of our day was spent playing and reading books and after dinner Katie and I took care of trach care.

By now Sadbh was very tired so bedtime was very easy.

Our most recent appeal for nursing coverage has been denied by Katie’s insurance so we are now in the process of filing an external appeal. Just like the external appeal we had to deal with last year with my insurance company we are expecting a serious amount of paperwork and a lot of stress. Roll on the good times!

New photos.

Photos from May 28 2011.

Photos from May 28 2012.

Photos from May 28 2013.

All the best,

Wayne, Katie and Sadbh.

Sadbh’s update – May 27th 2014

Sadbh did well last night and wore her trach cap for 6 hours throughout the night. She slept in until almost 7:45 and woke up in an excellent mood.

She started off the day by singing “Happy Birthday” to her cousin Fionn who turned one today.

We had a wonderful day reading books, playing Frozen, Sadbh was Princess Anna and I switched from Prince Hans and Kristoff and playing in the yard.

We got trach care out of the way shortly after Mommy arrived home from work and after dinner Princess Anna had us wheel her around the neighborhood in her red wagon. Unlike for Poppy, I was fortunate that she did not crack the whip for me to go faster.

New photos.

Photos from May 27 2011.

Photos from May 27 2012.

Photos from May 27 2013.

Happy birthday Fionn!!

All the best,

Wayne, Katie and Sadbh.

Sadbh’s update – May 26th 2014

Sadbh managed to tolerate her trach being capped for just over four hours over numerous sessions throughout the night. She woke up before Helen’s shift ended and was happy sitting chatting with Helen until Katie went down to take over.

Sadbh had a fun morning playing and hanging out with Poppy but soon it was time to head to the airport so he could catch his flight.

Katie and I were able to get trach care out of the way before we left and shortly after Sadbh got into the car she fell asleep.

Poppy gave her a big kiss without waking her.

She was very sad when she finally woke up and realized that Poppy was gone. They both had a great time together over the past few days.

Later in the evening Sadbh’s friends Clodagh and Cormac came by for a play date. Sadbh could not wait to show them her new house out in the garden and the three kids had a brilliant time.

After dinner Clodagh pretended to be a horse and asked Sadbh to climb on her back. It was hilarious to watch Clodagh going around the house with Sadbh and I was surprised how strong Clodagh was.

Sadbh did not want them to leave but it was getting close to bedtime and Sadbh was very tired from her busy day.

Going to sleep was much easier tonight than last night and Sadbh was fast asleep long before Helen arrived.

New photos.

Photos from May 26 2011.

Photos from May 26 2012.

Photos from May 26 2013.

All the best,

Wayne, Katie and Sadbh.

Sadbh’s update – May 25th 2014

Sadbh managed just over four hours with her trach capped but she had a very good night sleep. She woke up around 8 in a great mood and was delighted to see Mommy sitting there next to her.

Since the weather was good we took care of some gardening and Sadbh had a great time helping out. She got stuck into some serious weeding and when it came time to stuffing all the weeds and yard waste into the bin she did not hold back.

Sadbh got to release her butterflies in the garden and was able to hold a couple before they flew off. She did such a great job not to squish them.

After trach care we headed out for dinner but Sadbh fell asleep within a few blocks of the house. This nap backfired when it came time for her to go to bed this evening as she did not fall asleep until long after Helen arrived.

We had to wait until almost half past ten before she finally fell asleep and by then we were all wiped out.

New photos.

Photos from May 25 2011.

Photos from May 25 2012.

Photos from May 25 2013.

All the best,

Wayne, Katie and Sadbh.

Sadbh’s update – May 24th 2014

Poppy, Katie’s dad arrived last night after Sadbh fell asleep and as soon as Sadbh woke up she wanted to see him. It was quite early so she had to wait a while until he woke up.

She had a great night sleep and Danielle managed to cap her trach for six and a half hours.

When Poppy finally woke up Sadbh was very excited to see him. They spent the morning hanging out and when Mommy got home from yoga we got trach care out of the way.

The weather was decent so we headed out to take care of the garden. Sadbh wanted to go for a spin in her red wagon and had Poppy pulling her up and down the street like a horse. He was wiped out but Sadbh did not care and kept asking for him to giddy up faster, please.

In the evening we headed over to Jak’s Grill in West Seattle for dinner but by now Sadbh was very tired. She was very well mannered and did not fuss throughout dinner. Mick, who works there, gave Sadbh a couple of stickers for being so good and she was delighted with herself. He also showed Sadbh photos of his daughter Clara and her curly hair. Sadbh was impressed.

We made it home not long before Danielle arrived and thankfully it did not take long to get Sadbh to sleep.

New photos.

Photos from May 24 2011.

Photos from May 24 2012.

Photos from May 24 2013.

All the best,

Wayne, Katie and Sadbh.

Sadbh’s update – May 23rd 2014

Sadbh had a very restful sleep and Helen managed to cap her trach for just over five hours.

She woke up shortly after Helen left and was very content lying in bed while holding my hand for the next fifty minutes or so.

It was a grand way to stay the morning.

Sadbh was in for a treat later in the morning. Ali-Baba and her friend Kathy were coming by for a play date. We had hoped to get to spend the morning out in the garden however the weather was terrible so the tea party was held indoors and Sadbh had a fantastic time regardless.

Sadbh was very busy making sure that everyone had a full cup of tea and that there was enough snacks to go around. She did most of the ordering and I spent the time as her humble server.

Before they left, Ali-Baba helped with trach care and we thought Sadbh was going to take a nap afterwards. She was very tired but she proved us wrong and spent the afternoon enjoying herself.

Bedtime was a lot easier tonight and Sadbh was out before her usual bedtime.

New photos.

Photos from May 23 2011.

Photos from May 23 2012.

Photos from May 23 2013.

All the best,

Wayne, Katie and Sadbh.

Sadbh’s update – May 22nd 2014

Sadbh was not as cooperative last night and gave Helen a run for her money. It was a battle of the wills however Helen was able to cap Sadbh for over five and a half hours throughout the night.

Sadbh was in a very good mood when she woke up but she did need quite a bit of suctioning. Her airway was goopy but it did not take long before I was able to clear her trach.

Sadbh had a play date with her friends Conor and Aibhin later in the morning and she could not wait until they arrived.

The three kids had a lot of fun in the back garden. Sadbh brought out some of her ponies and was good at sharing, for the most part.

When Conor and Aibhin left Sadbh was getting tired however she had no intention of taking a nap. She had worked up an appetite so it was time for lunch and for the fun and games to continue.

Later when it was time for reading Sadbh passed out in my arms. She only lasted half an hour before she was sound asleep so I decided to take a nap too.

She actually napped for over an hour and a half and when she woke up she got a big fright. I picked her up to comfort her and she ended up peeing all over me. Poor kid was totally out of it and did not laugh when I pretended that it was me who had the accident.

Sadbh was excited to see Mommy arrive home and did no fuss when we got trach care under way.

After dinner we headed out to water the vegetables and rest of the garden. Sadbh found two of the smallest strawberries in the world and brought them up to me to show them off. She ate one and decided to keep the other for breakfast. I suppose you wouldn’t want to fill up too much before bedtime.

Unfortunately Sadbh’s afternoon nap prevented her from falling asleep anywhere close to her usual bedtime and by the time Helen arrived Sadbh was still wide-awake.

New photos.

Photos from May 22 2011.

Photos from May 22 2012.

Photos from May 22 2013.

Sadbh’s update – May 21st 2014

Sadbh tolerated having her trach capped for five and a half hours over a number of sessions. She woke up very sleepy and decided to hang out in bed for a while. We both got to snuggle for twenty minutes or so before getting ready for breakfast.

Sadbh was in a great mood all morning and was excited to hear that Ali-Baba was coming by for a visit. First we headed out for a walk to the playground down the street where Sadbh had a fantastic time. She is getting so much braver and was climbing to the top and sliding down the slide all by herself.

We hung out for almost an hour and it took some convincing to get her to leave.

Ali-Baba showed up with a gift shortly after we arrived home and Sadbh could not wait. We got trach care out of the way first and as soon as we finished Sadbh received yet another pony. Yesterday she was talking about wanting “Apple Jack” pony and coincidentally this is the same pony that Ali-Baba got for her. Needless to say, Sadbh was over the moon and could not believe her good luck.

This evening we headed up to Ali-Baba and Kirk’s new place for dinner. Sadbh was dressed up in her princess dress with a pair of hiking boots and looking very cute.

Katie met us there and Sadbh could not wait to show off her new pony. She got to meet loads of Ali-Baba’s neighbors and was introduced as Princess Anna. It was a funny evening.

She was pooped by the time we got home so it did not take long to get her off to sleep.

New photos.

Photos from May 21 2011.

Photos from May 21 2012.

Photos from May 21 2013.

All the best,

Wayne, Katie and Sadbh.

Sadbh’s update – May 20th 2014

Helen kept a very close eye on Sadbh last night and Sadbh managed to wear her trach for seven and a half hours over numerous sessions.

Every time Sadbh’s chest would start to retract Helen would remove the trach cap and give her a break for a few minutes until Sadbh relaxed again. Sadbh did fantastic and woke up in a great mood just in time to catch Mommy before she headed out to work.

We had a great day and had a lovely picnic out in the sunny garden.

One of her new ponies arrived today and she was delighted with herself when she realized it was Peachy Pie. I’m finding it very disturbing that I’m starting to become very familiar with the names of these little ponies.

Two of Sadbh’s caterpillars have morphed into butterflies and she spent ages today examining them in their habitat. There are three more caterpillars waiting to emerge from their cocoons.   

As soon as Mommy arrived home from work we got trach care out of the way.

Sadbh had a fun evening and was very tired when it came time for bed.

She tried her hardest to go to sleep with her trach cap on but in the end she could not do it so Katie switched it with a guard and she fell asleep in seconds.

New photos.

Photos from May 20 2011.

Photos from May 20 2012.

Photos from May 20 2013.

All the best,

Wayne, Katie and Sadbh.

Sadbh’s update – May 19th 2014

Sadbh wore her trach cap for over eight and a half hours over a few sessions throughout the night. Helen greeted me with a huge smile when I took over this morning and she was ecstatic with the breakthrough. I was delighted with the news and was surprised to see that she was still wearing it.

Sadbh slept in quite late and woke up shortly before nine. She was in a great mood and was eager to put her fifth sticker on the board. This meant that she would receive a gift and she could not wait until we headed out to get it.

Sadbh lucked out and ended up with three gifts. The first was “Pinkie Pie”, a little pony, a toy motorcycle and a toy pickup truck (which is actually mine). She would have been very happy if I bought everything she wanted but she had to settle for three items.

On the way home we stopped off at Trader Joes for the shopping and Sadbh insisted on bringing her new pony with her. She held onto it so tight so as not to lose it and she was very proud showing it off to everyone she met. It was so funny and she received quite a lot of attention throughout the store.

Things only got more exciting when she found Kangaroo Joey.

At the checkout she noticed that the shopkeeper had a big scrape on his arm. She asked what caused his “owie” and then pulled up the leg of her trousers to show off the “owie” on her knee from when she tripped over Sophia on Alki Beach nearly a month ago. Obviously by now her knee is well healed but she still felt it was important to show off her wounds.

The rest of our day was great and Sadbh had so much fun playing with her new toys. At one point she put the toy motorcycle between her legs and started driving it around the house. It measures less than an inch and a half tall.

We managed trach care at bedtime tonight and when we finished Sadbh was a zombie. It took some effort to get her to sleep and unfortunately she would not wear her trach cap. We tried putting it on an hour later but she was struggling to breathe so we removed it to allow her to fell into a deeper sleep.

New photos.

Photos from May 19 2011.

Photos from May 19 2012.

Photos from May 19 2013.

All the best,

Wayne, Katie and Sadbh.

Sadbh’s update – May 18th 2014

Sadbh slept great and managed over three and a half hours with her trach capped over a few sessions through out the night.

Thankfully she seemed to be over her cough she had a much better day than yesterday.

We all had a lazy morning and after trach care we headed over to visit Clodagh and Cormac. Sadbh was so excited to see her friends and she got to play with Clodagh’s Frozen dolls.

After dinner the kids got to watch Frozen for a while and Sadbh got to hear Clodagh singing along to all the songs. It was very impressive however I think Sadbh was more interested in listening to the movie rather than her friend.

She was quite tired when it came time to leave but it still took forever to get her off to sleep.

New photos.

Photos from May 18 2011.

Photos from May 18 2012.

Photos from May 18 2013.

All the best,

Wayne, Katie and Sadbh.

Sadbh’s update – May 17th 2014

Sadbh slept for a couple of hours with her trach cap on but we noticed her chest was retracting quite a bit so we pulled the cap off to give her a break.

Danielle capped Sadbh’s trach a couple more times throughout the night but it did not last long each time.

Sadbh had a tough start to the day when she fell out of bed around 5am. Danielle put her back in bed and comforted her until she stopped crying and fell back to sleep. Katie and I were very surprised that she fell out of the bed, especially since there was someone sitting in the room next to her. We were disappointed that we were not called down when it happened.

When Sadbh finally woke up she started coughing like crazy. After a while she threw up but thankfully she was in very good spirits.

This happened a number of times throughout the morning and it seems like she was working hard to clear some secretions from deep in her lungs.  She was also complaining that her belly hurt, so maybe she was fighting a small bug.

Today is Nini’s birthday so Sadbh wanted to wish her a happy birthday. Mommy recorded a video of Sadbh singing and sent it to Nini, it was very cute.

Overall Sadbh had a lazy but fun day. She took a nap with Mommy at one point and woke up well rested and with a big appetite.  From that point on, she seemed fine.  No more coughing and no more belly ache.

It was Katie’s company party tonight and since Sadbh was doing much better this evening we left Sadbh with Su-Jin.

Sadbh was looking forward to seeing Su-Jin all day and when she arrived she was excited to show off all of her dolls and horses.

Sadbh and Su-Jin had a lovely evening and bedtime came a little later than usual.

Sadbh finally fell asleep with her cap on and she lasted just over an hour.

New photos.

Photos from May 17 2011.

Photos from May 17 2012.

Photos from May 17 2013.

All the best,

Wayne, Katie and Sadbh.

Sadbh’s update – May 16th 2014

Sadbh managed six and a half hours with her trach capped over three different sessions throughout the night.

Even though she did not go to sleep we still presented her with a sticker in the morning and she was over the moon with excitement.

Sadbh and I had a much better day today and after breakfast Ali-Baba and Kirk stopped by for a visit. We headed out into the garden to plant some vegetables and flowers and Sadbh had a lot of fun playing with Ali-Baba and her house.

Ali-Baba helped out with trach care and thankfully Sadbh was very well behaved. This allowed us to get it taken care of quickly and as soon as we finished up Sadbh got stuck into playing with her dolls and ponies.

Sadbh was in for a treat tonight with a trip to the cinema for dinner and a movie. She got to watch Fantastic Mr. Fox and she really enjoyed her evening.

She was pooped by the time we got home and fell fast asleep without any problems. We were able to slip her trach cap on and she slept soundly without any difficulty.

New photos.

Photos from May 16 2011.

Photos from May 16 2012.

Photos from May 16 2013.

All the best,

Wayne, Katie and Sadbh.

Sadbh’s update – May 15th 2014

Sadbh fell asleep with her trach cap and lasted for just over two hours. Helen tried again a few hours later and she tolerated it for another two hours. She was definitely working very hard to get air however her sats were perfect all night. Helen noticed that Sadbh’s lungs contained a lot of secretions and determined that Sadbh might have some respiratory issue going on that is causing her to have to work harder to maintain.

She woke up just before Helen’s shift ended and she was in a very good mood. Unfortunately, her good mood did not last long and both of us had a challenging day.

By the time Mommy arrived home from work Sadbh and I were in a much better mood. We got trach care out of the way as soon as possible and in the evening Sadbh pretended to be a fairy with wings and I helped her fly a few laps around the house.

She was very tired when it came time for bed and fell asleep snuggled up to Mommy after a short while. Unfortunately she did not want her cap on, however Katie was able to slip it on as soon as she fell asleep.

New photos.

Photos from May 15 2011

Photos from May 15 2011 - Sadbh's moving out of the NICU.

Photos from May 15 2012.

Photos from May 15 2013.

All the best,

Wayne, Katie and Sadbh.

Sadbh’s update – May 14th 2014

Thanks to Helen, Sadbh managed to tolerate her trach cap for 6 consecutive hours last night. She had a restless sleep and after six hours she simply pulled the trach cap off. Helen figured that Sadbh had enough so she replaced the cap with her guard and Sadbh slept soundly until 7:30.

As soon as she woke up I gave her a saline nebulizer and cleared her trach with a few suctions. She was in a very good mood and when Mommy popped into the room she got even more excited.

After breakfast it was time for learning. It was hard to hold her attention as she wanted her dolls but thankfully she was patient and went along with her exercises.

Sadbh’s friends Conor and Aibhin came by with their mommy for a visit and Sadbh could not wait to show off her new house. They had a wonderful time and the three kids did a wonderful job sharing toys and helping each other in and out of the house.

After a couple of hours Sadbh started to get very tired and at this point she would not do what she was asked. We both knocked heads and it was time for her to cool down.

It was getting close to Conor and Aibhin’s naptime so Aoife loaded the kids up for their stroll home. Sadbh did not want them to leave and got very sad as she said good-bye. 

Sometimes, we realize the strangest things from this blog and the photos that we keep.  Apparently, this day, May 15th is an annual event and this is the 3rd year in the making!  For the last 3 years, on this day, Sadbh has had a playdate with her friends Conor and Aibhin (well, Aibhin was just a glimmer in her mommy's eye the first year).  Life is very funny and it repeats itself, often unbeknownst to us.  Its pretty cool to be able to look back and see these things from a larger perspective.  It helps us realize how lucky we are and what amazing friends we have.  

The rest of the day was a struggle and although she was overly tired, she would not nap.

After dinner she quickly went to bed but it took forever for her to finally fall asleep            .

She did not want to wear her cap but Katie was able to motivate her into wearing it. Katie had been talking with some of her colleagues about how to motivate kids to potty train etc and came up with the idea of a sticker board in which Sadbh would receive a sticker for every night that she fell asleep with her trach cap on. Once the sticker board was full of stickers Sadbh would receive a gift. On hearing this Sadbh got very excited and started to talk about all the possible gifts that she could earn. She talked about new ponies (she is turning into a huge my little pony fan) new dolls, a new pink motorcycle so she could ride along with me and so on. Then she told Katie that she should leave the room so she could make the sticker board and within a few minutes she was fast asleep with her trach cap on.

You simply cannot beat positive motivation.

Earlier in the day Katie received a call from the medical supply company regarding an outstanding bill from January through March. She did not have time to update them yet again on our insurance coverage so I called them back after she let me know. We have explained our insurance policy to this company so many times.

I was placed on hold for almost half an hour and by the time I got through I wrote the customer care agent the riot act. After explaining our policies yet again she realized that they had the two insurance companies in the wrong order as primary and secondary.

It’s amazing to think that something as simple as mixing the two insurance companies can be such a difficult thing to figure out for them despite being told each time we have placed an order or dealing with billing issues.

No wonder the nickname for Apria is “Crapria” by a lot of their customers. 

New photos.

Photos from May 14 2011.

Photos from May 14 2012.

Photos from May 14 2013.

All the best,

Wayne, Katie and Sadbh.

Sadbh’s update – May 13th 2014

Sadbh tolerated her trach cap for over four hours during two sessions throughout the night. The first session lasted until after midnight and by then she was working hard to breathe. Her next session was a few hours later and lasted almost an hour.

She woke up in a great mood just as Helen was getting ready to leave. At first she was pretending to be sleeping but eventually she gave the game away when I caught her giggling.

We had her homeopathic appointment this morning with Dr. Krista and Sadbh had a fantastic time running through Krista’s garden and checking out the baby fish in her pond.

Krista was impressed with the recent night-time developments and is researching a new remedy for Sadbh with these new changes.

After lunch Sadbh and I headed up to Capitol Hill for a walk. It was a beautiful day and the streets were extremely busy with all sorts of interesting things to look at. From school busses to fire engines to construction sites with all sorts of exciting equipment. As you could imagine it took us forever to get where we needed to be. Sadbh eventually got very tired and passed out in her stroller. She slept with her cap for half an hour before I removed it since she had a lot of air leaking through her stoma and not through her nose and mouth.

As soon as I removed the cap she got a lot more comfortable.

The rest of the evening was spent playing with three new dolls I bought her as a treat along the way. She was surprised to see them when she woke up, as she was fast asleep when I got them.

When it came time for bed she tucked her new dolls in bed with her and asked if she could have her trach cap taken off. We asked if she would keep the trach cap on and she reluctantly agreed to but it came off a short while later until she fell asleep where we put it back on.  

New photos.

Photos from May 13 2011.

Photos from May 13 2012.

Photos from May 13 2013.

All the best,

Wayne, Katie and Sadbh.

Sadbh’s update – May 12th 2014

Sadbh slept for six and a half hours with her trach cap on last night. Even though her sats were perfect all night she started to get a little restless around half past three so Helen removed the cap allowing her to sleep on.

Sadbh woke up in a fantastic mood at 8 and gave me the biggest hug when I leaned in to kiss her good morning. She was eager to get her day started so we got up and ate breakfast with all her ponies in the sunshine.

We had a fantastic morning doing arts and crafts, learning to write, building puzzles and playing out in the garden.

In the afternoon we both headed up to Madrona for a walk and for some fun on the swings and slides. Typically Sadbh does not get to play on these too often due to germs and so on, however since cold season is over she got to go crazy today.

She could not get enough but after an hour or so it was time to head on for some ice cream.

The rest of the evening was fun and as soon as Mommy arrived home we got busy with trach care.

Sadbh was pooped when it came time for bed and she fell fast asleep in no time at all.

Just before she fell asleep I was hooking up her humidifier and she grabbed me around the neck gave me a huge hug and said “we had a lovely day”. It was the perfect ending to a perfect day.

New photos.

Photos from May 12 2011.

Photos from May 12 2012.

Photos from May 12 2013.

All the best,

Wayne, Katie and Sadbh.