Sadbh
did great last night and managed almost five hours with her trach capped. She
woke up not long after Helen left and was in a good mood.
Our
morning started off rocky and Sadbh really pushed me to the limits of my patience.
Later
in the morning Ali-Baba stopped by to hang out and help with trach care. We got
trach care out of the way and straight afterwards the three of us had a tea
party. It was quite the affair and we each had to quietly sip our tea with our
pinkies extended for show.
After
Ali-Baba left Sadbh and I had a good chat about how important it is for the
both of us to get along and what we had to do to make sure we kept each other
happy. I also told her about the plan I had for the evening as long as she behaved
and did what she was told.
The
rest of the day was great and Sadbh did a fantastic job at being good. There
were a couple of times where she would start to throw a tantrum and all of a
sudden she would stop, smile, give me a huge hug and say “I love you daddy”. It
was obvious that she was doing her best to tow the line and to get her treat.
Her
treat for the evening was a trip to the local cinema for an hour and a half of
cartoons with popcorn followed with pizza. She was in heaven and was grinning
from ear to ear. When we got home she gobbled down a bowl of ice cream followed
with a reading from her new favorite book, Frozen while listening to the movie
sound track.
Thankfully
bedtime was easy tonight and I was able to slip Sadbh’s trach cap on shortly
after she fell asleep.
We
received an update from Sadbh’s primary insurance company today that they are
going to reverse their decision for declining home care nursing. This was great
news however they are reducing the coverage from 16 hours a day to 10. Our
attorney advised us to hold our ground on the 16 hours coverage so we are not
out of the woods yet.
All
the best,
Wayne,
Katie and Sadbh.
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