Sadbh
slept great but only managed to wear her trach cap for a couple of hours.
She
woke up early again and was over the moon when Mommy popped her head in the
door of her room. She missed Katie so much over the last few days and spent the
morning snuggling and catching up.
We
had trach change scheduled for earlier in the week but since Katie was out of
town we rescheduled for today. Lately Sadbh does not like having her trach
changed so Katie did a great job talking to her about it and getting her to
agree to let us do it. Unfortunately, when it came time to change out her trach
she would not let us near her and kept blocking her neck with her chin. It was
a stressful time and after an hour or so of serious negotiations we were able
to lull her to sleep.
We
had her hooked up to her oximeter so as soon as her heart rate dropped into the
high eighties we got ready to change it out. Sadbh was very calm and restful so
on the count of three Katie pulled the old trach out and I went to put the new
one in. It would not go in the whole way and with that Sadbh woke up, pushed
down with her chin and blocked her neck. I had to grab her head and push it
back while pushing the trach in all the way. It was a gut wrenching moment for
us all but we were able to clear her air way and get finished up.
The
rest of the day was fun and Sadbh had a play date with Clodagh, Cormac and
Aidan later in the evening. She was delighted to see her friends and really
happy to get lost in all the toys in Clodagh and Cormac’s room.
Bedtime
was easy tonight as Sadbh was completely wiped out.
All
the best,
Wayne,
Katie and Sadbh.
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