Sadbh had an interesting night. According to Danielle
she needed quite a bit of suctioning and was under some distress at one stage.
When Katie took over at 6am she noticed that Sadbh’s mist collar was attached
incorrectly and that it had a triple knot rather than using the snap fitting.
It took Katie almost twenty minutes to untie the knot when she went to remove
the mist collar and in the case of an emergency this would have proven to be
disastrous. We plan to have a serious conversation tonight when Danielle
arrives to discuss.
Sadbh had a great morning and after a saline
nebulizer and numerous suctions she was ready to get the day started.
We were planning on heading over to our friends to
watch the World Cup finals so Katie and I got trach care out of the way just
before we headed out.
Sadbh was delighted to be heading to her friends and
apart from a few little fights over sharing toys they all had a great time.
The highlight of the day was when the kids got to
play with the garden hose out in the back garden of Michael and Roseanne’s
house.
Katie and I gave in to our reservations and let Sadbh
join in on the fun. It was extremely stressful since we did not want her to get
her trach and trach ties wet but the fun she had made it all worthwhile. She
had a smile on her face that stretched from ear to ear.
When she finally finished up we had to change out the
Polymem dressing from around her trach and thankfully she allowed us to do so
without putting up a fuss.
Sadbh had about as much fun as she could handle and
when we left she soon fell asleep. She was out for the entire trip home and
woke up just in time for dinner.
She had a good evening but when it came time for bed
it took forever to get her to sleep but thankfully she finally fell asleep just
before Danielle arrived.
For the last few months Katie and I have been
discussing surgical options to resolve her vocal cord issue. As we allow Sadbh
to do things that push our comfort levels we realize how much she has been
missing out as we shelter her in the effort to protect her trach and her from
catching colds and the likes.
All
the best,
Wayne, Katie and Sadbh
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