Sadbh slept well through the night and her heart
rate, blood oxygen level, respiratory rate and temperature were all normal.
This was a good sign especially since we did not give her any medication.
Helen did suction a few times to keep Sadbh’s trach
clear and noticed that her secretions were down low in her lungs.
Our objective, when Sadbh woke up, was to make sure
she could get up out of bed and to see how much pain she had in her neck. We
were concerned yesterday evening about the risk of meningitis but were relieved
when her fever broke earlier in the evening.
Caity stopped by for a recertification just as Sadbh
was waking up. Sadbh was in a much
better mood but she did not want to get up and refused to turn her neck complaining
that it was sore.
She insisted on a couple of band-aids and had Mommy
place them on the achy parts of her neck.
After some persuasion we were able to get her up and
into her armchair for a saline nebulizer, as her trach was full of secretions.
After that we decided to give her an albuterol
nebulizer and this helped clear her lungs further.
Sadbh had breakfast in the dining room and watched a
movie with Sophia. Her mood was improving all the time and as soon as she was
done with the movie it was time for the fun and games to start.
Her appetite had also improved and she had a huge
lunch.
She still required occasional suctioning but not as
much as the last couple of days.
She was starting to get tired but then there was a
knock at the door. It was the FedEx guy delivering a package for Sadbh. She was
so excited when I opened it and showed her the contents. It was a box full of
all sorts of wonderful clothes with all her favorite ponies from our friend
Denny. It cheered her right up and she could not wait to try them on.
Unfortunately for Sadbh she had to wait until after
naptime but she went to sleep for a couple of hours without any problems.
Sadbh was a little groggy when she woke up at first
but when she saw me sitting there she turned around and said, “ Oh my God, what
are we going to do today?” It was so funny and then she said, “ let’s get
dressed up in my new pony clothes.”
The rest of her day was much better and I was able to
cap her trach rather than using a nose. It was the first time that her trach
had been capped since Sunday and she was able to manage her secretions without
any problems.
Trach care was a little later than usual this evening
but Sadbh did not mind. She still has a lot of secretions and we gave her a
nebulizer right after trach care.
She was extremely helpful but she did not go to sleep
until almost 10pm.
All
the best,
Wayne, Katie and Sadbh
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