Monday, July 7, 2014

Sadbh’s update – July 7th 2014


Sadbh slept soundly for the first few hours. Her oximeter started to alarm shortly after 1am with her blood oxygen level dipping down below 92 percent every twenty minutes or so. Initially we thought that the oximeter probe might be failing but soon Sadbh was having a very difficult time breathing as her trach and airway was filling up with secretions.
Katie and I were quick to react and with Katie suctioning while I kept Sadbh calm we were able to clear her airway getting her blood oxygen level back up to the high nineties. Despite being able to breathe easily, Sadbh was still in a state of panic and kept trying to pull at her trach as if it was capped.
Eventually she calmed down and fell back to sleep.
This went on for the rest of the night and we had to suction her trach every half and hour or so to clear her secretions.
Her temperature was slightly high as was her heart rate, however her respiratory rate was normal after each suction.

Since we were already scheduled to head back to Seattle today we got the ball rolling as early as we could. It still took four hours to pack up all the stuff into the car.
By now Sadbh was definitely fighting something but she was in a fairly good mood. She kept saying “I am a little bit sick” and “I don’t want to get any one sick” and shaking her head with sorrow.  We gave her a saline nebulizer and some Tylenol before hitting the road.
To make the journey as comfortable as possible we downloaded a movie for her to watch on her iPad and we were off.
Everything went fine for the half hour of the journey and as we entered the town of Hoquiam Sadbh coughed and then started to vomit up everything she had eaten this morning. It happened so quickly that by the time I pulled over she had puked all over her trach and trach ties.
Katie and I with the help of Sophia got Sadbh out of the car and prepared to clean her up. Her trach and neck were covered so Katie and I had no choice but to carry out an emergency trach care on the side of the road with poor Sadbh lying on a blanket on the ground.
Our friends Gerry, Sarah, Derek and Suzie pulled in as they drove by and were also a huge help. It was very stressful for everyone and we were so grateful to have such fantastic friends right there to help out.
Sadbh was also a superstar and kept calm the entire time allowing us to get the job done without any difficulty. At one point we thought that we might have to do a trach change but thankfully we were able to get her cleaned up and back into clean clothes.

As soon as we got back on the road Sadbh fell asleep and slept the rest of the journey back to Seattle.

Once home Sadbh had a nice long bath and after dinner we did trach care.
She got to finish off the movie that she did not get to see earlier.  Her fever started going up again and we needed to suction several times an hour to keep her clear. We gave her Ibuprofen to help get her temperature down and just before bed we gave her another saline nebulizer to moisten up her secretions so they don’t get sticky.
Helen is working tonight so we know Sadbh will be in great hands.






All the best,

Wayne, Katie and Sadbh

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