Sadbh woke up shortly after seven and straight away
she started chatting with Kim. She was talking about what she is going to dress
up as for Halloween and all about baby Taco.
She was very cranky throughout the day and I think it
was because she had a fairly restless night.
We had a busy morning as we had our post-op visit
with Dr. Inglis. Sadbh was in a great mood but was nervous that Dr. Inglis
might want to stick a camera up her nose.
Dr. Inglis, Pam and the rest of the team were
disappointed with the lack of success with Sadbh’s surgery and agreed that she
had made a step backwards rather than forwards.
Sadbh realized fairly quickly that her worst fear was
about to come true and it took all my strength to hold her still while Dr.
Inglis ventured through her nasal channel and down to her vocal cords.
Unfortunately we could not get a clear view of her vocal cords however Dr.
Inglis believes that there might be a slight build up of granuloma on the vocal
cord that was opened and that this is possibly the cause of the additional
blockage.
Once the camera was removed Pam was quick to get
Sadbh a box of toys to choose from. It took a while for Katie and me to comfort
Sadbh but eventually she was happy and in the box looking for a toy.
On the way out of the clinic we bumped into Jackie
who trained us on respiratory care, trach care, trach changes and everything to
do with Sadbh’s trach. She was so surprised to see us and could not believe how
big Sadbh had gotten.
We also ran into Robin who was our occupational
therapist. As with Jackie, Robin was so happy to see Sadbh’s progress and how
well she was developing, especially with her speech.
We were all drained by the time we got home and Sadbh
even nodded off to sleep.
Before we could do anything we had to give Sadbh a
bath and manage trach care. She was delighted to soak in the tub and play with
her bath toys. At one point she nearly slipped under the water but I was able
to catch her just in time. This probably took another ten years off my life.
Later in the evening we headed up to Capitol Hill for
a walk.
It was great to get out of the house and into the
evening sunshine.
By dinnertime Sadbh was out of her mind delirious and
we did not help much by giving her a cup cake for being so brave during her
doctors visit. Soon she was covered head to toe in cup cake crumbs and as happy
as a clam.
Every time I visit Children’s Hospital I always
realize how good we have it despite Sadbh having a trach. On the way to the car
park we have to pass a parking area for RV’s and trailers belonging to parents
that have to relocate from Alaska, Montana and other places that are not so
close to Seattle. Some of these mobile homes are parked for months if not
years.
All
the best,
Wayne, Katie and Sadbh
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