Last night was the first night we had a nurse since last week. When she arrived, Sadbh was in a very deep sleep and had a fairly good nights sleep for the most part. She did have a rough time of it from midnight until 2:30am, and fortunately our nurse was well able to take care of the situation.
On my way out to work at 5:30, Sadbh woke up and greeted me with a huge smile and was ready for breakfast.
Her day overall was quite good and she was very happy. She had a lot of secretions throughout the day, and my father, along with the day nurse had to suction constantly.
Trach care was straightforward tonight since she was so tired and had fallen into a deep sleep right after her bath.
Just before bedtime tonight, she was playing on the floor and my father had the TV on. She was fixated on the telly and couldn’t keep her eyes off of it. Even when I blocked her view, she would try to look past me to see what was on in the big rectangle in the corner.
At that, it was time to turn the TV off so she can get some quality playtime before she hits the sack.
We are still considering our options and know whatever we decide will be the right choice. At the end of the day, as daunting as some of our options might seem, our situation could always be a lot worse and we are so lucky to have such a beautiful little girl, and so many great friends to keep us strong with their thoughts and support.
Thank you,
Wayne, Katie and Sadbh.
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