Sadbh had another night of coughing fits and required constant suctioning.
Regardless, she woke up Saturday morning with a huge smile and was ready for a nice cuddle in bed.
Since we were changing out Sadbh’s trach, we worked really hard to get her as tired as possible so she would sleep through the entire procedure.
Katie took the lead in managing trach care, with my father helping out by holding the trach.
When it came time to change the trach, my father removed the old trach and Katie inserted the new one.
Typically when the new trach is inserted, it would cause Sadbh to gag and cough, however she usually falls back to sleep straight away.
When Katie inserted the new trach, Sadbh let out a loud cry. This was the first time we have ever heard her voice.
I did not realize at first since I was busy helping my father with the suction machine, however when we all watched the video recording, it was quite obvious that it was her voice as her trach was blocked by the obturator which is necessary for insertion.
As soon as the obturator was removed, the only sound that could be heard was the airflow through her trach.
It was definitely a very emotional moment for us all and we are hoping that this is an indication that Sadbh’s situation is improving.
Since she was now awake, Katie had to move quickly to finish off trach care.
Later in the evening we had a dinner event in Seattle as part of a fundraiser for St. Mary’s food bank.
A month or so ago, we met a nurse, outside of the agency, who is available for part time nanny work or baby sitting.
It wasn’t easy leaving the house, but this nurse came highly recommended and after watching her with Sadbh, we felt a lot more confident.
Despite feeling nervous about leaving Sadbh at home, we had a great night and Katie was receiving constant updates from the sitter via text.
Take care,
Wayne, Katie and Sadbh.
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