Sadbh woke up very early for breakfast this morning.
Katie was called down at 2:30am by the night nurse and as soon as she arrived down stairs, she was greeted by a sad little girl.
Often when Sadbh wakes up during the night, she appears to be confused when met by the nurse and not one of her parents.
However, as soon as Katie arrives in the room, Sadbh immediately get’s very excited and shows her delight with a big smile.
This morning was no exception.
Before taking her out of her cot, Katie unhooked all her equipment so she could feed her easily.
As soon as she picked her up, Sadbh started to cough hard and appeared to struggle with her breathing.
Katie placed her back into her cot and hooked up her oximeter to get a reading and immediately noticed that blood oxygen level had dropped well below 90%.
She quickly suctioned her trach and her blood oxygen shot back up to 100.
Unfortunately this caused our nurse to panic, however Katie remained calm and was able to take control of the situation.
Since Sadbh was feeling much better, Katie removed her from her cot, this time with all her equipment attached, and breakfast was served.
Afterwards, Katie and Sadbh snuggled for a while and by 3:45am Sadbh was back in her cot, fast asleep.
At 6am, it was my turn to take over, and I arrived downstairs to find Sadbh fast asleep with her arms out of her swaddle and up by her head.
She looked adorable and I was surprised that she hadn’t woken herself up with the occasional flailing around.
She slept for another 40 minutes, and as soon as she woke up, I brought her up to Katie for her second breakfast.
Since both ladies looked so comfortable, I decided to jump into bed and cuddle up next to Sadbh. Before I knew it, all three of us were asleep and I must admit, even though it was a short sleep, it was the best sleep I had gotten all night.
Sadbh slept on for another hour and a half before she was ready for her next feeding.
Sadbh is crazy about tags. Clothing tags, tags on her animals, on the underside of her play mats. If there is a tag on something, Sadbh will find it and before you know it, she will be sucking on it.
Today had to be the funniest tag find of all. She has this lovely stuffed raccoon that she received as a gift from Katie’s friend Christina in NY, and it’s got a tag that’s in the most awkward of places, right between it’s hind legs. And unfortunately Sadbh found it.
I’m going to have to remove that tag, just so people don’t get the wrong idea.
Later in the evening, Lydia stopped by and got to spend time with Sadbh. At one point, Lydia was waving across the room at Sadbh and Sadbh started to wave back.
Her development is improving every day.
Shortly afterwards, Katie arrived home to a very happy baby. She had been awake for most of the evening and despite being tired, was excited to see her mummy.
Katie had a call with the respiratory therapist at Children’s today to discuss the issue with Sadbh’s dry airway throughout the night and the issue with her thick secretions, and they indicated that we should raise the temperature settings for her humidifier to see if that helps with the situation.
They also confirmed that we could start using humidifiers throughout the house, as long as we sanitize them on a daily basis.
It is critical to keep these humidifiers sanitized as we need to prevent any bacterial contamination and infections.
All the best,
Wayne, Katie and Sadbh.
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