Sadbh slept like a log last night and
only needed to be suctioned once.
Larissa did notice a whistling sound
through Sadbh’s trach and when she checked her out, she found that the hose
became disconnected inside her sleep sack.
It was a quick fix, but it’s
something that we have to check on a regular basis now.
She slept until 6:30 and after a
quick snack she went back to sleep for almost an hour.
For breakfast, Sadbh had a huge feast
of banana, oats, cereal and baby mum mums. She had a ferocious appetite and
sucked everything down like a vacuum cleaner.
Su Jin was working today and Sadbh
was excited to see her.
Sadbh was quick to show off her new
gate that I installed earlier in the week and how good she is at climbing the
stairs. The gate has a plastic screen and Sadbh loves to push her face up
against it, much to everyone’s amusement.
After a few hours of playing around,
Sadbh started to get tired, so it was time for trach care.
Everything went well and Sadbh slept
for almost two hours.
Once she woke up, Nini and Su Jin brought
her outside to practice using her Passy Muir Valve.
She tolerated it a lot better than
expected, however, both Nini and Su Jin had their work cut out for them trying
to keep Sadbh distracted and from pulling the PMV off.
Once they were all done, it was time
for lunch and a bottle.
Unfortunately, Sadbh pulled the lid
off the bottle and dumped the contents all over herself and her trach.
Nini and Su Jin had to act fast and
carry out their second trach care today, all while Sadbh was awake.
Thankfully Sadbh was very calm and
cooperative throughout the procedure.
After trach care, Sadbh got to eat
lunch and it was perfect timing since she was starving.
It was a nice afternoon, so the three
ladies went for a walk through the neighborhood with Sadbh facing forward in
her stroller. She was in her element and was pointing at airplanes, dogs and waving
at passerby’s.
It is hard to imagine that Sadbh has
had her trach for one year now. Without her trach, she would not be able to
breath on her own, independent of a ventilator and she would not have been able
to leave the hospital last June.
It’s amazing how a tiny piece of
molded plastic can make all the difference. Between living a somewhat normal life and being allowed the
opportunity to develop as a healthy baby compared to being confined to her
hospital bed hooked up to all sorts of equipment.
Take care,
Wayne, Katie and Sadbh.
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