Sadbh must have had a really restless night as she
was exhausted all day, had big bags under her eyes and was extremely
temperamental.
Even though Sadbh was still sleeping, Kim was hiding
behind the chair when I checked in shortly after seven. She sat hunkered behind
the seat until Sadbh finally woke up and started to ask for me. Very strange
indeed.
I received a very vague rundown of how Sadbh’s night
was and in a flash Kim was out the door.
Katie and I decided that today would be Kim’s last
day taking care of Sadbh and thankfully the agency has a new nurse for us to
meet tomorrow evening.
Just as well as I don’t think I can clean the toilet
one more time after Kim. Did not realize that was going to be part of the deal with
having home care nurses.
Sadbh’s day was hit and miss. After breakfast we
headed down to Costco to pick up a few things. Sadbh was happy sitting in her
stroller until she saw all the Christmas toys on display. She was desperate to
get a closer look and despite being told that we would not be buying any toys
today she got very upset and had a nice big tantrum in the store. I had
anticipated a tantrum and purposely had her strapped into the stroller so she
was a little easier to manage. That said it was still very stressful, as I had
to sanitize and care for her trach as she started to have difficulty breathing
after a very short while.
She was on and off for the rest of the day.
We had an appointment with Dr. Inglis at three and
she was not really keen on going, especially after the last visit.
Katie arrived home shortly after two and we checked
into the hospital on time at ten to three.
We waited for an hour and a half for Dr. Inglis and
his assistant, Pam and when they finally arrived we found out that they had a
much harder day than we did. Even though we were annoyed and tired from waiting
for so long we quickly realized that it was nothing compared to the terrible
news that two of their patients received over the previous couple of hours.
Dr. Inglis determined that Sadbh had not made any
progress from the last visit and commented on how her voice was definitely not
as strong as it was pre-operation. He believes that her voice will get stronger
over time but advised against any further surgical procedures for fear of Sadbh
losing her voice completely.
As a result we could be dealing with her trach for
another few years at least. We scheduled a follow up appointment for mid
January in the hope that there might be some healing improvement from the operation.
Sadbh was like a zombie for the rest of the evening
and after dinner she got to enjoy a cup cake treat.
Since we do not have a nurse tonight I brought down a
mattress so we will have a family sleep over in Sadbh’s room until the weekend
when Harjinder’s next shift starts.
All
the best,
Wayne, Katie and Sadbh
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