Sadbh woke up shortly after six and thankfully went
back to sleep for another forty minutes before finally getting up.
She was quick to ask Kim for some stories but soon
needed to be suctioned. Kim tried to give her a saline nebulizer but Sadbh
would not have any of it and took off running through the house. I was able to
catch her and calm her down. She was in a much better mood after I suctioned
her trach clear.
The rest of the morning was great and as a treat we
headed up to the park in Madrona. There were a few other kids there but Sadbh
was disappointed that her friend Henry was nowhere to be seen.
This did not slow her down, though, and she was off
having the best time ever.
Once home it was time for a bath and then lunch, this
is where the day took a turn for the worse. By now Sadbh was tired and hungry
but only in the mood for snacks.
It was a tough afternoon for both of us and by the
time Katie arrived home we were both wiped out.
We had plans to meet our friend Catherine for dinner
tonight since she will be heading home to Ireland on Thursday so as soon as we
were able to get Sadbh to eat dinner it was time for trach care. This was also
a struggle since she was so tired but soon we got things done and then we were
off to see Catherine.
Sadbh was well behaved during dinner and almost fell
asleep on the way home. We were late so I had to text the nurse to let her know
that we were running behind.
It did not take us long to get Sadbh cleaned up, into
her pajamas and hooked up to her equipment. She was out like a light and as
soon as we briefed Kim on how Sadbh’s day was she was quick to take over. I’m
hoping that Sadbh sleeps in tomorrow morning and gets herself a good nights
sleep.
All
the best,
Wayne, Katie and Sadbh
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