Sadbh had a terrible night sleep and was coughing a storm all night. We were up suctioning most of he night. At one point, Sadbh thought it would be a great idea to pull on her trach and ended up pulling off a chunk of the Poly-membrane dressing from under her trach. This meant that we had to insert a replacement piece between her trach and neck.
It was a very trying night, and we were all exhausted to say the least, and by the time I headed out to work around 5:45, both Sadbh and Katie were in a deep sleep.
Katie got to interview a couple of new nurses from the agency today and we are hoping to interview a third nurse sometime next week.
We order her nappies in bulk from Amazon, and we received this months order today in the largest box ever seen. The box could have contained triple the amount of nappies, but that did not stop Sadbh Nana and Granddad from having fun with the packaging.
Ali-Baba stopped by to join in on the fun and helped out with trach care. Sadbh was in a very deep sleep throughout trach care, but afterwards she had another coughing fit and woke herself up.
It was shaping up to be a nice day, so all the ladies headed out into the back yard and practiced using the Passy Muir Valve. Unfortunately, Sadbh could not exhale properly and ended up puking.
Our suspicions are getting stronger that the Botox is not working, however we are also thinking that she might have pollen allergies.
In the afternoon, Granddad and Nana took Sadbh for a nice long walk around the neighborhood, allowing Katie to take a well-deserved nap.
Tonight, after we brought Sadbh to bed, the coughing fits started and after almost an hour of solid coughing, Sadbh got sick all over Katie. Team Sadbh (Granddad and Nini) sprung into action and arrived upstairs to help Katie and myself clean up the mess and get Sadbh comfortable again.
Eventually she fell asleep, but it took another 40 minutes or so before her heart rate and blood oxygen level to stabilize.
Katie did some research on allergies, especially with babies and toddlers and learned that birch trees are quite bad for this. This is very unfortunate since we have three of them in our back garden.
Sadbh has her 12-month appointment with Dr. Bowe next week, so hopefully we will learn more about this and which tests we can take to see if this is what’s affecting her.
All the best,
Wayne, Katie and Sadbh.
No comments:
Post a Comment