Sadbh slept great and joined us in
bed shortly after midnight.
She needed suctioning a few times,
but always fell back to sleep afterwards.
Breakfast was served just before 8am,
and when she was done she leaned into Katie, took her binky out and gave her a
big kiss. What a way to start the day.
Sadbh had a huge appetite today and
ate non-stop until her first nap at noon.
She even got to drink cows milk for
the first time and she loved it.
Just before her nap, she got the
chance to Skype with Granddad and Nana back in Cork.
She lit up as soon as she heard their
voices, and once their image came up on the screen, she was over the moon.
My parents were telling us about a
young toddler from Dublin that has a rare digestive order and who is about to
go to Children’s in Boston to undergo an operation to construct a new esophagus.
My parents showed us a photo of this
little guy and his twin brother and Sadbh started smiling and making the sign
for babies.
Sadbh was exhausted tired when it
came time for her nap and Katie had to work hard to get her to sleep.
Once she drifted off, trach care was
very straightforward.
Obviously, we take trach care very
seriously and her neck and stoma (the hole in her neck where the trach fits) is
in excellent shape as a result.
Most days, everything looks great,
and all she needs is her neck cleaned, powdered with Nystatin and a fresh
dressing around the trach along with a new trach tie.
Occasionally we find that there is
bruising or sores around her neck, so we have to treat those quickly so it
heals and so she is comfortable.
This evening, we met with a few of
our friends to discuss plans for the up-coming High Five Sadbh Guild Kickoff
Event drive, and Sadbh came along for the walk. It was a warm overcast day and
Sadbh was happy checking out everything.
She never ceases to amaze us. When a
plane flew overhead, Sadbh did the baby sign for airplane. And later she did
the sign for car.
She comes up with a new sign every
day or so. It’s very inspirational and shows how intelligent she is.
All the best,
Wayne, Katie and Sadbh.
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