Sadbh had a similar night to
the one before and needed to be suctioned a few times. When She only woke up
once while Julie suctioned, and as soon as Julie was done, Sadbh gave her a big
smile and went back to sleep.
Her heart rate did increase
into the 125 to 140 range from 4am onwards and remained there for the rest of
the morning until she woke up at 7. Her typical sleeping range is from 90 to
115.
She started to call for
Katie but she immediately relaxed as soon as she realized that I was in the
room with her.
Since we were all up so
early we decided to go get the shopping done for the week. She was quite happy
going through the grocery store pointing and naming all the foods that she
knew.
Since we have been having such
a difficult time getting consistent daytime nursing coverage for Sadbh, we have
decided to take control of the situation by hiring a full time nanny with the
nurses as secondary back up.
After we find a candidate
that has all the qualifications we will arrange for trach training with the RT
team at Children’s and also with my father for the last few months of his stay
here.
We have been reviewing
applicants and today we met the first candidate. Sadbh liked her immediately
and she seemed to have the qualifications necessary to look after our princess.
We have a couple more
candidates to meet with this week and possibly more later in the week or next
week.
Sadbh was getting very tired
by the time the interview was wrapping up so we finished up and got Sadbh into
the bath as soon as we could.
She got to Skype with my
cousin and his daughter, Abby, in England.
Despite being very tired she
was full of smiles and even blew them a bunch of kisses.
Trach care went well and
Sadbh slept for two hours.
She was not quite ready to
get up after waking up and sat in her bed reading for 45 minutes or so.
Later on we headed downtown
for a spot of shopping and Sadbh loved checking out the mannequins.
She was running around like
crazy and it was hard to keep up. She really had a lot of fun.
She was exhausted by 7pm and
was fast asleep by 7:30. Her heart rate is up and down and we can tell by the
look in her eyes that she is fighting something.
I hope it’s nothing too
serious and that she will feel better tomorrow.
All the best,
Wayne, Katie and Sadbh.
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