Sadbh slept a little bit
better last night, but still not great. She woke up a very happy little girl
around 7:20 and was very hungry for breakfast.
Despite the wet weather,
Sadbh got to head out for a nice walk through the neighborhood. She was bundled
up nice and snug in her stroller and she was delighted to be outside.
It was a fun filled morning
and when it came time for her nap she was wiped out. She slept for an hour and
a half and woke up very hungry. As soon as she was dressed she devoured a plate
of pasta, cheese and other yummy foods.
Later in the afternoon Sadbh
had an appointment with her cranial sacral doctor, Dr. Cavanaugh. He had some
serious work to do since she was so sick over the past few weeks. He relieved a
lot of pressure around her neck and torso due to all the coughing and extra
effort to breathe.
It was a very productive
visit and Sadbh will undoubtedly feel much better as a result.
We all had a wonderful
evening and Sadbh had so much fun. It was amazing the amount of energy she had
and when it came time for bed she had no desire to slow down.
I prepared her a nice bath
however it seemed a little bit too hot for her royal highness. She actually
asked me “daddy, cold water please” and of course I could not let her down.
It took forever to get her
to sleep. I usually keep the monitor close to me as Katie tries to get Sadbh to
sleep. This is so I can respond if needed.
Tonight I heard Sadbh say,
“Wayne, water please”. At least she has manners.
She finally fell asleep so
Katie and I started trach care. It went well until we were securing her trach
ties. She woke up extremely upset and fought us tooth and nail. It was very
stressful and but we were able to secure her trach tie and eventually get her
calmed down.
All the best,
Wayne, Katie and Sadbh.
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