Larissa had a tough night
and Sadbh’s vitals where all over the place. Her temperature was on the high
side, as was her heart and respiratory rate. She had quite a few coughing fits and had to be suctioned
constantly throughout the night. All in all, Larissa did a fantastic job
keeping Sadbh comfortable, despite the situation.
I took over from Larissa at
6 and hoped that Sadbh would sleep on for a while so both she and Katie could
get some rest.
Unfortunately, this was not
the case and Sadbh woke up just as I entered the room.
She was not happy and wanted
her mammy but she instantly calmed down as soon as Katie arrived.
Her morning was quite rough
and she threw up a couple of times after having coughing fits.
Kara worked today and just
after she arrived we loaded Sadbh up in the car and headed off to the doctor.
Sadbh was completely out of
it during the short drive to the clinic and started to get sick all over
herself just as we pulled into the car park. It was a very stressful moment as she
was still buckled into her car seat and she even got some over her trach.
Dr. Hathaway was quick to
see us and after checking Sadbh’s lungs she had her nurses take some blood
samples so they could test to see if there were any other issues.
They also gave Sadbh two
shots of her antibiotic, one in each leg, to speed up the process and she also
gave her a nebulizer to help open up her airway and lungs.
Sadbh was not happy with all
the injections and having to breath in the Albuterol mist.
Thankfully the tests came
back negative for any other viruses.
When we arrived home, Sadbh
was wrecked and she and Katie had a nice, snuggly nap in the living room. Then the doorbell rang and it was
Ali-Baba! When Sadbh opened her
eyes and saw her, she was over the moon.
She was extremely delirious as she walked her grandmother around the
house, but she was having fun and it was great to see her up and about for a
change.
It wasn’t long before she
was wiped out again so Katie and Kara decided to start trach care.
The medical supply company
came through very quickly on a request for a nebulizer, but I had to drive to
their office to pick it up. Thankfully traffic was not a problem and I made it
back half way through trach care.
By now Sadbh was wide-awake
so Ali-Baba had joined in trying to help keep her still. She did not want to be
swaddled so between Kara and Ali-Baba they had to work hard to keep her from
moving around.
By the time she finally fell
asleep she was extremely exhausted from working so hard to breath. Thankfully
Kara was watching over her when she noticed Sadbh’s blood oxygen level drop
down into the low 90’s. The color from her face started to drain and she was
turning blue. Katie and Kara pulled out the oxygen mask and turned on her
oxygen to 5 litres to bring her oxygen level back up. We are so grateful for
Kara’s quick response.
Sadbh’s evening was up and
down, but she definitely showed some signs of improvement. She drank lots of
water and apple juice and even ate most of a slice of toast.
She was much more receptive
to taking her medications and did not put up as much of a fuss when it came to
her nebulizer.
We just received word that
Sadbh’s night nurse cannot make it tonight so Katie and I will take shifts throughout
the night to make sure that Sadbh is ok.
We have another appointment
with Dr. Hathaway in the morning and we are hoping that Sadbh has a much better
night tonight.
All the best,
Wayne, Katie and Sadbh.
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