Sadbh was up early again and she got to hang out with
Harjinder for a while. Sadbh wanted Harjinder to play with her but since it was
so early Harjinder tried to get Sadbh back to sleep.
It was a very wet day so when Sadbh came up stairs we
had a snuggle and the four of us slept in for a while longer.
We are really enjoying our morning snuggles and its
really sweet to see Sadbh bonding with Cillian first thing every day.
It was a very lazy day and Sadbh spent it taking turns
playing with each of us.
As usual, she kept each and every one of us going and
it was impossible to keep up with her energy level. She did not even take a
nap.
Trach care went well with Katie and Granddad managing
it. Sadbh was happy watching Netflix on Katie’s phone and as soon as they
finished it was time to play again.
She dressed up as a fairy afterwards and had me
flying her around the house. Once she was satisfied with flying around the
house it was time for me to be her horse with her riding on my back. It was
never ending, however, she had a great time.
Granddad and Nana sent Katie and I out for dinner
tonight while they looked after Sadbh and Cillian. Cillian slept as usual and
Sadbh kept her grandparents busy.
After dinner it was time for dessert and after eating
her own Sadbh wanted Granddad’s cupcake. He explained that it was his and not
hers and she responded with “in this house, everything is mine”. In the end she
got half of Granddad’s cupcake. Cheeky girl.
Last night after the nurse started her shift we realized that the compressor pressure had not been checked. I asked the nurse to see if it was set to 10 and she responded that it was set to zero as per normal. This concerned me so I went in to double check. Apparently the nurse was using the wrong pressure gauge to check the compressor.
It's very frustrating to have to retrain how to operate Sadbh's equipment over and over.
All
the best,
Wayne, Katie, Sadbh and Cillian.
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