Cillian was just falling back to sleep around half
past six in the morning when Sadbh decided it was time for her to wake up and
join us upstairs. Both Katie and I had been awake for over two hours by this
stage and we pleaded with Sadbh to go to sleep until we all got some much
needed rest.
I went down to sign the nurse out and after she
headed off I went back up to join the family for a snooze.
Sadbh did good and managed to stay quiet for another
hour or so.
Eventually it was time to get up and start the day.
After breakfast Sadbh and Mommy spent the morning
reading books and hanging out together.
Later in the morning Sadbh got to help give Cillian a
bath and she enjoyed it a lot more than Cillian did.
Trach care went well today and soon afterwards Sadbh
was curled up in our bed sleeping her head off. She was completely wiped out.
We let her sleep for an hour before waking her up and
when she woke up she was the crankiest that I have ever seen her. She got so
upset that we had to remove her trach cap to allow her to breathe properly and
after a while we had to suction her trach to clear her secretions.
Eventually we were able to calm her down and once she
was happy we headed off to Alki Beach for a walk in the sunshine.
Sadbh had a great time splashing in the puddles and
writing in the sand. She really wanted to build sand castles but unfortunately
it was too cold for that.
By bedtime she was quite tired but it still took a
while to get her to sleep.
We have Sadbh’s follow up appointment with Dr. Inglis
tomorrow morning and there is a strong chance that he will place a flexscope up
her nose to view her vocal cords.
Sadbh hates this procedure so in preparation of
tomorrows visit she picked out a gift last week and will receive it after the
appointment.
Tonight she was talking to Katie about her
appointment and mentioned that Dr. Inglis might not place the camera up her
nose. Katie then asked her if that would be ok in which Sadbh responded that
she wanted him to do the flexscope and that we should make sure to ask him to
do it. Presumably, she wants this
so that she is sure to get her new toy.
All
the best,
Wayne, Katie, Sadbh and Cillian.
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