Sadbh tolerated her trach cap for an hour before we
had to remove it. She was starting to work harder to breathe so we decided to
take it off so she could have a better night sleep.
She woke up at four this morning and wanted to get
her day started. When I talked to her about why she was awake so early she
answered that she wanted to play with me. I don’t know if this is true or if
she was trying to sweet talk me.
According to Harjinder, Sadbh wanted her mist collar
off and as soon as she asked for this Harjinder knew that Sadbh wanted to go up
stairs. Harjinder explained that she could not go up as it was way too early
and Sadbh responded with a growl.
Eventually Harjinder was able to get her back to
sleep and she slept on until twenty past seven. She did not want to spend time
with Granddad and took off up stairs to spend time with us.
We discovered after she came up that she hit Granddad
and she told us that she was frustrated with him since she really wanted to
come upstairs. She then admitted to us that she must have gotten out of the
wrong side of the bed and when she went back down stairs she apologized to
Granddad.
The weather was horrible so we had a lazy but playful
day. Sadbh got dressed up as princess Anna and had her hair tied up in braids.
Once she was all dressed up she got to talk to Ali-Baba and her cousins in
Portland.
At one point she was helping Katie change Cillian’s
nappy when she started telling him that he was her best friend forever. It was
adorable.
Later Katie and I managed trach care and after that
we loaded up the car and headed out for a drive to take care of a couple of
errands.
Sadbh eventually fell asleep and snoozed comfortably
for forty-five minutes or so.
She was full of beans and in a great mood when we
arrived home and after dinner she spent the rest of the evening playing with
Nana and Granddad in the basement.
She pretended that she had a breast pump and was
pumping milk for her baby doll. Granddad was able to capture it on video and it
was hilarious to watch.
Katie and I headed out to meet the gang for a friends
birthday. Nana and Granddad looked after the two kids and it was almost ten by
the time Sadbh finally went to sleep.
We are so lucky to have my parents here helping out
and we can go out and be confident that Sadbh is in excellent hands.
All
the best,
Wayne, Katie, Sadbh and Cillian.
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