Sadbh woke up at seven, closer to her normal time.
She came up and snuggled with Katie for another hour and was in a great mood.
Ali-Baba and Michelle came by for a visit today and
Sadbh was over the moon to see them both.
She had a wonderful time catching up with Ali-Baba
and she showed off her new toy from yesterday’s hospital visit.
Katie and I managed trach care in the early evening
and spent a few hours playing with Sadbh while Cillian slept.
She had me pretending to be her horse and by the time
she was done riding me around the house I was absolutely exhausted. She would
not accept this and insisted on going for another few laps.
Around dinner things started to take a turn for the
worse. Sadbh became very difficult and extremely combative. It was a very
stressful evening for all three of us and I’m sure it was also quite difficult
for my parents as they witnessed the mayhem.
Each battle ended with hugs, kisses and “I love yous”
but the ceasefires were short lived and the ensuing battle would erode away at
our nerves even further.
By bedtime Sadbh seemed to be in good spirits. Both
she and I had spent half an hour playing with her horses in the basement and
she was really enjoying herself. I gave her a count down to when playtime was
going to end and when it was time to head upstairs to bed. She did not like
this but headed up with minimum protest. Changing into her pajamas and going to
the toilet were without incident but when it came time to brush her teeth the battle
started up again. By now I was completely done in and Katie took over and got
Sadbh off to bed as quickly as possible.
Sadbh fussed for fifteen minutes or so and finally
fell into a deep sleep.
This morning while Sadbh was snuggled up with Katie in
bed she kept saying how sad she is when she wakes up and is not with Mommy,
Daddy and Cillian. It must be a very difficult transition for her and despite
being really good for 90% of the day, it is getting very obvious that she is
having a much harder time of it than she is putting on.
All
the best,
Wayne, Katie, Sadbh and Cillian.
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